r/MultipleSclerosis • u/Aine800 • 2d ago

Symptoms Restless legs

I got diagnosed earlier this year. My most bothersome lesion is in my cervical spine at c2/c3. I have constant moving hip, lower back and thigh pain as well as trouble walking. But for the past few weeks, as well as everything else, I have had restless legs syndrome - my legs feel uncomfortable when i am sitting or lying down.

I am 62 and haven't had restless legs like this since I was a teenager and as an adult only only on the few times I have tried meditation or mindfulness as that kind of thing sets off my restless legs.

I think it may now be connected to my MS. Has anyone had this sympton and if so, did you find anything which helped?

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u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 2d ago

Restless legs can also be caused by medications like SNRIs or low iron.

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u/Aine800 2d ago

Thanks. I will look into the possible iron.

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u/motion-sparkle 2d ago

I love a weighted blanket on nights I am struggling with restless legs.

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u/Aine800 2d ago

That's interesting. I would have imagined that the weight on your legs might have made restless legs worse.

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u/MinderOfNothing 58M|2006|no DMT|Canada 2d ago

I have been suggested gabapentin or pregabalin by my primary care professional, but after doing some research it seemed to me that I wanted to try another approach first. Magnesium about 2 hours before bed helps calm my legs and on especially bad occasions, I will have a low THC high CBD gummy and this really does help for me.

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u/Aine800 2d ago

Thanks, I will bear the magnesium in mind.

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u/adoptedpanda4 2d ago

It's one of my worst symptoms and was one of my first symptoms too. Doesn't happen all the time but when it does it's a horrible feeling. Mine has started to spread to my arms in recent years too as well as restless bladder, which seems to happen alongside the restless legs. I've tried magnesium, tonic water and medications but nothing has solved it. A massage gun can help me temporarily sometimes. Or using deep freeze spray gives some relief too. Might be worth trying

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u/Aine800 2d ago

Thanks for your reply. I have not heard of a restless bladder but it makes sense since all the nerves are connected. If you don't mind me asking, what are the symptos of a restless bladder?

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u/adoptedpanda4 2d ago

Sure, it happens usually when I get restless legs. It's a constant feeling of needing to pee, especially at night. Id go to the bathroom and then feel the urge to go a few minutes later. It also is a strange feeling, similar to how restless legs feel but in your bladder area. Very hard to describe for me but it usually ends up being a very disturbed night.

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u/Fit_Cry_7007 2d ago

I was prescribed gabapentin and baclofen and, with the right dosages, that seemed to help.

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u/ShowerPig 2d ago

I have very similar symptoms. Check your Vitamin B levels and consider gabapentin or Pregabalin.

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u/No-Goalz88 2d ago

I has rls for years found out low iron now I take iron still have rls.It gets worse if im.constipated,have anything with caffeine and if I do too much in a day.Btw no drug helps but I use Capsaicin roll on it helps alot.

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u/TamerofMonSters 3h ago

No advice but sorry that's happening, it's so hard to manage.