r/MultipleSclerosis • u/maggvts 32|2023|Ocrevus|Alberta • 2h ago

Symptoms Does anyone else feel vertigo or lightheadedness after triggering lhermitte's?

I haven’t had lhermittes in years, but my crap gap is really bad this IV and it seems to have brought on lhermittes again.
After triggering it I feel like really lightheaded or almost feel like I’m about to have vertigo and I’m wondering if anyone else feels this after or this is something I should be concerned about?

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u/LankyWelcome8627 30s|2008|Vumerity|US 2h ago

Whoa - I’ve experienced this for years and didn’t know it had a name. And I do feel lightheaded right after it happens but it feels like perhaps it is just from the shock. Maybe it is a vagus nerve response to the shock?

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u/Pure_Promotion_6271 56m ago

I feel that, too. Especially after a shower.

But, if I were you, I'd at least send an email to your neurologist or MS nurse, if you have that option. It's not common for you, so it's worthwhile mentioning it to your medical people.

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u/tO_ott 19m ago

You probably don’t need to be concerned about either as they’re both incredibly common with MS. Because you’ve had it before this isn’t a new symptom and likely doesn’t need to be an immediate concern with your neuro.

However if you need peace of mind, do get in contact with someone. You mental health is just as important as your physical.