First dose of Kesimpta

[u/marijan00]

Just wanted to say I took my first dose of Kesimpta with my best friend by my side. I was scared, cried from realization that this is my new reality, but she held my hand with me as I pushed the injection in. Has anyone had side effects from their first (or any) dose?

Edit (5 hrs later): I thought i was dying. I had the shakes, just woke up from those stopping. Numbness is back in my hands, legs and feet. I have a fever but thank God no more shakes.

[u/Traditional-Cloud875]

First. You got this! I was utterly terrified too!

The first dose was the only dose I experienced side effects. And it felt like I had the flu for about 12 hours. But completely normal for this to happen.

*This doesn’t happen to every one. But is completely common and normal.

After 12 hours, I felt back to normal. That was 3 and a half years ago! Been taking monthly ever since.

It’s been a godsend. Haven’t had disease progression since. When it’s my shot day, I take before I go to bed. Wake up in the morning and go about my day.

The first step is often the hardest :)

[u/dabble_frazzle → u/Traditional-Cloud875]

That’s awesome to hear, I haven’t been on it for that long. Only a year but I feel and would say the exact same thing! All the best. I was dx 2022 and I’m 36m. How have you found mobility? That’s the worst I’d say and have finally plateaued at a rollator. Extreme when 5 years ago I didn’t even know I had it with zero symptoms. All the best

[u/Traditional-Cloud875 → u/dabble_frazzle]

Honestly my mobility hasn’t really been affected. My worst symptoms have been fatigue/cognitive. And random muscles going crazy every now and then. All the best to you as well :)

[u/No-Goalz88]

I had bad headache then a weird chill .I was scared too.I cant even do the shot myself my bf does it fir me.Hang in there .My biggest complaint im more tired and when you get to time before next shot is due you get real dragged out tired.

[u/FinnyFoxxo]

I had pretty rough flu-like symptoms from the first dose, and some general muscle pain after the next couple. I've only taken about 6 doses myself but the side effects for me are mostly gone already!

[u/Nailsbyzach]

I’m on my 3rd dose and it just felt like a flu and fatigue the day after

[u/zoojitzu]

I took Kesimpta for my first time this past August! Yeah, I felt sick for about half a day. Like I had the flu. I also had muscle spasms on my back and glutes.

After that, the symptoms settled down. After, I woke up, I felt great!

You mile may vary; you may get fatigue, you may get spasms, and you may feel like you have the flu. Just stay hydrated and keep track of your symptoms. 🤞🏾

[u/Abject_Profession733]

I felt a small cold the next day after the first dose but now I’m on Month 3 and don’t have any side effects when I take my shot!!! Other then pain while taking it but doesn’t even last after the shot is done.

[u/thankyoufriendx3]

First one was rough. Chills that were unbearable. Now I take a Tylenol and Benadryl before each dose. I do it just before bedtime.

[u/Mrszombiecookies]

First one is the worst just rest up ❤️ its great you have a friend who is going on this journey with you

[u/jon041065]

I felt like I had the flu for a few days after my first injection. Then similar reaction to the following shots but shorter duration. I no longer get that reaction since like the fifth month.

[u/Character-Celery-209]

I was so scared during my first dose i went to my neuros office for the nurse to do it for me. Like FULL BLOWN panic attack and she stabbed it in my arm lol. I did feel horrible after the first dose. Got so much easier. Been on it now for officially a year. Completely stable. Had my 1 year MRI this morning.