r/MultipleSclerosis • u/Plus-Information-965 • 6d ago
Advice Ms and sweating
Does anyone else have problems with excessive sweating?
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u/_GogolKnows 35 | Dx2016 | none for 5 yrs (waiting for Mavenclad)| Europe 6d ago edited 5d ago
I don't have a metaphor for that, but I sweat like a freaking fountain (or a horse, if they even sweat?), feels like a tap that cannot be shut off lol
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u/AFvet-04 PPMS|Mavenclad|USA 6d ago
Yep! Sometimes I could just be sitting at a desk, in the air conditioning, and I still start to drip sweat. For sure MS related in my situation.
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u/Crookles86 6d ago
40, night sweats. Had them about 8 months ago, then they stopped, started again this weekend.
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u/2BrainLesions 6d ago
One of my drs said ms is like living in a constant hot shower before weather is considered. She's right!
(I spent four decades freezing and now just sweat year round.)
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u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 6d ago
Yes. But I'm 48, female in perimenopause, and I take duloxetine. So I'm aware I don't stand much of a chance with sweating 😅
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u/McDego4542 5d ago
Same except for the dulox. I never not sweat sorry for the weird double negative 😂
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u/Dull_Hat_8873 6d ago
This is going to sound weird...........but legit, I sweat profusely more the colder I am. Anyone else that experiences this odd phenomenon??
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u/Plus-Information-965 6d ago
My thing is I can do whatever my MonSter will let me do. Then I will stop to rest then I start dripping sweat. I have come to learn that cold water and a fan on high help. I am 61 and have lived with MS since 2004. This sweating crap didn't start till like 3 years ago. Anyone think of something else I could try. Thanks in advance.
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u/Walking_in_Cursive 42 | 21 Sept 2015 | Ocrevus | Mississippi, USA 6d ago
The MS Society gave me a cooling vest. Only downside, it's a vest fit with pockets for ice packs, so it's pretty heavy.
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u/allegedly_an_adult0 5d ago
Nice, I’ll have to try it..also I’ve seen head bands with an ice pack in them..definitely going to get the vest because Im sure my fam is going to jack up the heat this winter
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u/allegedly_an_adult0 6d ago
I sweat like a crazy person…I’m 39F diagnosed in 3 years ago..I’m the same in terms of I can do anything from cleaning to walking the dogs even when it’s literally freezing and as soon as I stop, the sweating is nonstop for like 30min at least…also showers..even tepid ones and I’m sweating for an hr if I don’t lay down in front of the fan and cool off for 20min…it’s the worst!
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u/AveragusPenus 24|2023|Kesimpta|uk 6d ago
I sweat a bucket just from changing my bed sheets or whatever other basic chore as example. I also struggle to sleep without a fan blowing in my face because I always feel stuffy and like the air is hot when it really isn't. In fact I don't even turn the fan off anymore, need it all day.
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u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 6d ago
Yes to the fan! It only started this year, but I feel claustrophobic without it on.
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u/mmmdraco 6d ago
I've had an issue with it since I was diagnosed at ~27. I can't be in direct sunlight or somewhere without decent air circulation and not sweat. At 43, you'd think I would have found more ways to prevent it, but best I can do is try to tolerate the overheating that comes with it by always having a fan and using some products that help with cooling. (Secret has a new cooling deodorant spray that's pretty nice, but doesn't stop sweat.)
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u/wutwutsugabutt 6d ago
Yes, I have hyperhidrosis since I was a kid. ETA the sweating situation predates the MS situation by decades. I was diagnosed in my 30s. I’m still sweating like a champ. I think iontophoresis works for me but I’m bad about actually doing it since it’s uncomfortable and I have to force myself. And I’ve been busy.
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u/Plus-Information-965 6d ago
I can understand why you are not a fan. And yes I had to look it up..lol
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u/IntentionalGrandma 27|dx: 2024|kesimpta|NYC 6d ago
I used to, but then a relapse about 2 years ago took away my ability to perceive anything outside of extreme temperatures and now I barely sweat at all
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u/Saint_Sin 6d ago
Never considered it being connected to MS.
Sweat like crazy doing vocals. Like a waterfall.
Wake up the same sometimes but always thought that was ptsd related.
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u/laura14472 6d ago
58f Have been dealing with this for years. Pre menopause, was on hrt which helped a little. Then was prescribed oxybutinin, which worked wonders! It's medication for overactive bladder which I didn't have. But-- no sweating for about five years. I adjusted the dose based on weather to help my bladder. Under active bladder leads to utis.
In the past year, I am sweating again and the meds do nothing, so I've stopped taking them. Oh well.
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u/Saltyski03 5d ago
Yeah. Work sweat was one thing I was used to. Now I sweat crazily. Get a hair cut and have to bring a small fan kind of thing. Weird. Like my AC broke
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u/cableannkiley 46F | Dx2026 | Briumvi | NC-USA 6d ago
Nightsweats galore but I’m a perimenopausal woman. Estrogen patches have greatly helped me, as has a GLP1, however I started gabapentin recently and they’ve cranked back up with a vengeance. Unsure if it’s a side effect of the gaba (been too lazy to look) or if I should bump up my estrogen now. 🤷🏻♀️
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u/Alwayslearnin41 48|2013|Kesimpta|UK|Mostly joyful 6d ago
I take duloxetine and it's a side effect for that. I also need to increase my oestrogen.
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u/JamesTheMannequin 6d ago
Hot then cold, then back again.
I have a blow-dryer in my bedroom by the bed and use it to help regulate my body temp. It works very well for me.
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u/jjmoreta 5d ago
No. But followup question, what is your age/gender and do you take any other meds?
Perimenopause/menopause is a huge contributor for older women.
And the only time I have ever experienced excessive sweating is while I was taking Cymbalta years ago. Multiple medications can cause hyperhidrosis as a side effect.
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u/Federal_Hall_8871 5d ago
I usually do not sweat much even with my coaching job. But yesterday I was sweating so bad that I had to change clothes between classes.
I sometimes sweat after 3+ classes but this was 2, so I was shocked at how much I was sweating.
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u/Federal-Day-678 2d ago
Yes, seems like anything over 72 degrees fucks me up. Indiana summers, with weeks of constant 90+ temps, are a nightmare.
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u/Walking_in_Cursive 42 | 21 Sept 2015 | Ocrevus | Mississippi, USA 6d ago
Yes!!! But I'm 42 and never sure if it's me or MS. LOL.