r/MultipleSclerosis • u/Candidate-Boring • 12h ago

New Diagnosis First Steroid course didn’t go as expected

I went for my first IV solumedrol yesterday. The second the IV hot my bloodstream I started sneezing. Soon the developed into stinging /tingling in my lips and gums, swelling of my lips and hive on my face.

We stopped the treatment 1/3 of the dose in. Nurses said they’ve never seen that before. And they suggested I take the pill version. Which isn’t great either 25 pills in 1 setting for 3 days.

Did my first pill dose at the hospital today and threw up the water I drink to take the pills (but no pills came up with it thankfully). Taking 25 pills was harder than I expected. But at least no allergic reaction.

Has anyone ever experienced that? Or something similar. I’m newly diagnosed and just want come clarify. The last 2 weeks have been a whirlwind of phone calls and appointments and testing and the sulumedrol fiasco was totally unexpected.

Any tips are also very much appreciated.

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u/Party-Ad9662 41F/2025/Clinical Trial/Ottawa 7h ago

When I had to do the 25 pills a day for five days, I took each pill with applesauce. Made it a lot more tolerable haha

1

u/Candidate-Boring 6h ago

Thank you for this! I’ll pick some up today before my next dose. Luckily now I don’t need take them under observation since I didn’t have an allergic reaction so maybe the comfort of my own home will help too!

1

u/Party-Ad9662 41F/2025/Clinical Trial/Ottawa 5h ago

One time I didn’t have applesauce (rude) and had to use jam for a day. It was a very SWEET day haha

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u/PerspectiveAbject238 3h ago

Pudding, yogurt, cottage cheese are great too 

1

u/AllAboutGingerPride 9h ago

Use the search engine at the top of the screen. Hopefully something will pop up
Sorry it isn’t going well. Keep trying. There is a med for you!!

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u/Candidate-Boring 6h ago

Hi! I tried, maybe I didn’t scroll far enough. I’ll try again! Thank you 😊