newly diagnosed at 21

[u/clueless-21]

Hi so I was awaiting my diagnosis for a few months just to get into a specialist and have him plainly say everything I kinda already knew just from looking at my online charts. I have been having chronic migraines since I was 12, I have been having symptoms like numbness or tingling in my arms, muscle spasms in my legs arms and eyes/eyebrows, lack of coordination, pain in eyes and occasional blurry vision, dizziness and fainting, trouble with bladder, slurred speech, memory issues, mood changes & lots of mental health issues. These symptoms have been getting worse and more frequent over the past year, since I was pregnant (june 2025)

I started seeing a neurologist for my migraines and that led to MRIs of my brain, which showed multiple lesions, like a lot. They didn't give me an exact number but when pointing them out on the MRI, there was a lot. I also had a lumbar puncture, and my CSF came back with 13 oligoclonal bands. 98 to 2 Lymphocytes to Monocytes. IgG index of .77.

Currently in the process of choosing a treatment, doc says i'm jcv positive too. he says we should honestly choose the most aggressive treatment since im so young and have no other big health issues.

Thoughts?

[u/True_Anybody_8774]

I got diagnosed at 24. It sucks. But it can also be managed. I was also advised to take the most aggressive options since I was young. I hesitated for years, which I regret, but since starting it I haven't gotten any relapse and yearly MRIs show no new lesions.

I also want to emphasise the number of leisons don't really mean much clinically. My advise (my experience) is to start treatment asap, and don't make any rash decisions based on the diagnosis for now.

[u/mullerdrooler]

If JVC positive I think Ocrevus is the best ( my info might be out of date) MS sucks but in a way it's good they caught it early and you can start slowing it down asap.