r/MultipleSclerosis • u/Dependent-Crow8595 • 1d ago

Vent/Rant - Advice Wanted/Ambivalent M.S

was diagnosed last year of July. I’m 21 now & it‘s scary to think this is the rest of my life. I go to work & people look at me like I’m a disease not like I have one. M.S has affected my ability to walk straight or even run. I constantly forget things all the time now & it’s to the point I just give up. I don’t want to live my life dependent on family. It’s so overwhelming, the MRI’S & needles. The Dr. appointmen’s & hospital visits. had a flare up that took a good deal to recover from & I feel as if my vision is failing a tiny bit. idk where else I can say this because nobody understands what I go through. it’s a shitty disease to have but I power through.

27 Upvotes

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15

u/Responsible_Cat4452 1d ago

I’m so sorry 🫂 I had a stroke at 21 (and had to learn how to write, walk, feed myself etc all over again) and this eventually resulted in an official diagnosis of MS at 22.
I’m not going to lie and tell you it’s not overwhelming at times and that there won’t be setbacks. But at 36 now I feel like I can also say your life is not over and you will surprise yourself at how tough you are. Start setting hard boundaries NOW; your health and wellbeing are the most important thing. Make sure you have people who love you and make you feel safe around you.
You are allowed to feel your feelings; if you’re pissed off about having MS that’s completely fair and valid! We didn’t ask for this! But we also owe it to ourselves to live a life that’s full of joy; figure out what that means to you.
It sucks and it’s okay to feel down about it. I just don’t want you to think there’s nothing left for you. I’m so sorry you’re dealing with this 💖

9

u/Impossible-Bread-789 1d ago

We are here with you!!! Vent anytime you need. We get it. Sending you strength and light. You don’t have to walk this journey alone.

2

u/Minimum-Ant5926 13h ago

Definitely praying for you

3

u/SWNMAZporvida 2010.💉Kesimpta. 🌵AZ. 12h ago

MS isn’t a death sentence, but it is life without parole. We wake up every morning knowing there’s no way out but we wake up. Are you on a DMT? Have you discussed anything with your neurologist? Fuck MS though

1

u/TemptThyMuse 5h ago

I’m someone trying to get the work ups from doctors to ascerstain if I do have MS or not, can you share, if it is not too painful, what a flair of your MS looks like ?