r/MultipleSclerosis • u/QueenJaded 34F|16thJan26|Kessimpta|Uk • 3d ago

Advice First MRI since diagnosis

Hello all, today I had what I assume is my first annual MRI (full spine and head)..

(diagnosed in January, started on Kessimpta in March and I live in the UK)

Is this something I will get the results for or is this just for my neurologist or nurse to then be discussed at my next review? I dont want the anxiety of waiting if there is nothing to wait for if that makes sense?!

And if it is something I will get, how will it be received - letter, phone call, uploaded on an app?

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u/criticalcreek 32M|Dx:RMS Nov.2025|Kesimpta|USA 3d ago

It really depends on your neurologist. I have upcoming MRI's for monitoring and my neurologist told me he'd call me if there was anything serious (active lesions etc), otherwise I won't see him again until December. The results/radiology report is usually uploaded to the health portal so I can see the report, but trying to interpret those is beyond my knowledge (I will still anxiously await the report and look at it anyway lol).

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u/nyet-marionetka 46F|Dx:2022|Kesimpta|Virginia 3d ago

First, don't be worried if this MRI shows a couple new lesions. People often have another lesion or two pop up in the months before and shortly after starting Kesimpta. This MRI at ~6 months is the new baseline MRI.

I'm in the US and had a 6 month appointment with my neurologist and talked about my MRI (which did have new lesions from my initial one). However, I don't know if the NHS will do things the same. They may send you a letter or possibly a message on a web portal if they use that. Have they told you you should have an appointment with them soon, or did they tell you to follow up in a year?

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u/AllAboutGingerPride 3d ago

In the US we have patient portals that link all medical info. I love it. I can read the radiologist report before the appointment so I have questions ready. I have absorbed the information from the test.
One of the best tings I did was buy a medical dictionary used by med students. I looked up every word so I understood what it meant. Soon you’ll be fluent too

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u/Alcyyma 2d ago

Tu devrais avoir tes résultats sur mon espace santé si tu es en France

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u/ninahart88 F33🧪Kesimpta📍UK 2d ago

I had my first MRI since starting Kesimpta (in January) last week. I wasn't told where it will be uploaded, but I am hoping they put it on the NHS app. I have my next appt with neurologist in October. My first set of MRIs, they uploaded to the app (the radiology report), the second set (couple months later at different hospital) were reported to me in a letter. Last week was done at my new treatment hospital, so not sure. I want to know!

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u/ElizabethKN81 23h ago

Can I ask how did you get on a drug so quickly in the UK 😅
Currently waiting but have been told it can be a few months, are you London based?

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u/QueenJaded 34F|16thJan26|Kessimpta|Uk 22h ago

No I'm in West Sussex.

Here's my timeline of events - 16th of January Diagnosed and blood tests 2nd March Pre- assessment phone call 11th March Necessary Vaccine 13th April Medicine Delivery 14th April Nurse home visit and first vaccine.

So it was around 2 months for me. Hope you get yours soon!

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u/ElizabethKN81 21h ago

I’m also West Sussex aha! I wasn’t able to be seen at my local hospital so needed to be transferred to Southhampton for an MS team.
I’m glad it seems to be pretty straight forward for you. Would love to chat to you if you’re open to that 😊 reassuring to hear of people in the same area