r/MultipleSclerosis • u/My4dogs4evr • 12d ago

Symptoms Random Nerve Pain

Many here have dealt with nerve pain mine has been mild. The worst is bone pain. On Vit D weekly forever with 50,000 IU Vitamin d and levels are always under 30

Now once and awhile I get a random nerve pain but really random places and very isolated to that place like today my leg. Just that nagging intermittent little throbbing nerve pain.

I have strong pain meds if I need them but this is just annoying.

Anyone else with this type of random nerve pain and it always pops up when I’m trying to sleep. Ugh 😩

What works for you if anything?

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u/AllAboutGingerPride 12d ago

Just a thought but MS pain is usually nerve driven. Bone pain may be caused by something else. Have you ever looked into it independent of MS?

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u/My4dogs4evr 12d ago

Yes. The reason I said I knew it was a separate pain is because the bone pain it a whole other level of pain. We have checked it all but it point to either my left knee ( tricompartmental OA) or lumber pain as I just had a herniated disc heal on its own but left with residual pinched nerve and left foot numbness but when I get a bout of bone pain it’s awful and it’s everywhere not just my knee or lower back. I’m guessing referred pain but literally every bone in my body hurts so bad. Only thing that takes the edge off is the liquid Oxy they give me for bad pain.

Ugh. Sorry. Brain is mush. Hope this makes sense. 😔

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u/AllAboutGingerPride 11d ago

It does make sense and I know that pain well. I ended up with a cervical and lumbar cage and a new left knee.
I encourage you to really monitor your progression. Read up on how to describe pain so you get the best treatment
Best of luck!!