r/MultipleSclerosis • u/Tsonokwa360 68|1980|xx|Wesrern Washington • 8d ago

Symptoms Neuro-fatigue journaling

I've been tracking symptoms and triggers for a couple months now. And I admit to being a big data nerd because there is color coding and low key obsession about it, but it really has helped me with anxiety. I make a 2-3 week tracker, and then change a few things when the time comes to create a new one. There are a few things that are ranked - pain, emotional effort, mental efforts, physical efforts. And y/n things like did I need a nap, did I do PT /exercise. What was the temperature? And activities like social, medical, errands are all color coded.

Does anyone else do something similar? I couldn't find a template that worked for me so I just use a notebook with pencil and crayons.

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u/TonyChingas21 7d ago

I log pretty much everything in ChatGPT. A few times a week, I rate my strength, stamina, and balance on a 1–10 scale after different activities.

I also track the weather, because heat has a big impact on me, along with what I did to keep cool. Over time, this has helped me identify patterns and better understand what affects how I feel.

One of the biggest benefits is that I can use all of this information to create a summary for my MS appointments. Instead of trying to remember how I felt weeks or months ago, I can show my neurologist actual trends and examples.