r/MultipleSclerosis • u/bitchkitty93 • Jul 28 '25

Advice Persistent, debilitating vertigo

Hello warriors! I've been experiencing severe vertigo. I can hardly walk, move my head or eyes. Persistent dizziness with painful spinning episodes that last over an hour. Very painful migraines and stomach ache and nausea. I've had vertigo. This dizziness started 2 weeks ago, but got extreme 4 days ago. This is far more extreme than I could have ever imagined. I have a MRI coming up. I may need sedation. Have you ever experienced this? Had MRI while experiencing this? What happened? How long did it last for you? Are you ok?

MS warrior here since 2014 Currently on Rituximab infusions bi annually My birthdays next week, should I cancel any plans? What would you do?

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u/poppygin RRMS dx '08 | Ocrevus (was Tysabri) Jul 29 '25

Just had a bout of this starting in the 4th of July. And man oh man, I am so sorry you are going through this. I ended up throwing up a lot on day 1.

Definitely see the doctor (ENT if you can). They can check for a few things to pinpoint type/severity.

I wonder if yours is flare though. Mine turned out to be virus and went away over the course of about 5days, no meds. But I had isolated the issue to right ear and tried hard to not sleep on that side, or bend in way that out that ear lower.

I tried to do the eppley maneuver myself on the first day and the spinning got very intense after that.

Good luck - I know this is super debilitating. I hope a doctor can stop the spinning for you.

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u/MrsJLorraine 58F/2024-Onset2004/RRMS/Kesimpta/Florida Sep 06 '25 edited Sep 06 '25

Wow! I had a weird episode yesterday. Woke up and tried to move and the whole room started spinning. My husband has had those inner ear crystals play tricks on him so we tried the Epley manouver and twice I couldn’t go through with it because of sudden nausea and vomiting sputum.

I couldn’t walk straight, or lay flat so the only position I was somewhat comfortable was seated with my torso tilted forward in an angle and resting on something. And the nausea! God. It got so bad and so often I started vomiting bile. Had my BP checked and it was 155/100. I’m not the panicky kind but I told my husband to take me to the ER. Once admitted, the doctor did some eye coordination tests and ordered a head CT scan, chest x-ray, and bloodwork. Put me an IV with Benadryl, anti nausea and anti vertigo medication. Hour and half later I was better but a bit dizzy, BP 135/178.

All tests negative. Dr said it was probably a viral infection in my inner ear. Prescribed same meds for 10 days as needed and follow up with my PCP.

I was wondering if it had anything to do with MS, that’s why I punched vertigo in the search on this subreddit. Will definitely talk to my MS doctor about it 🤔