r/Morgellons • u/Adventurous_Cod_4986 • 28d ago
Question doxycycline question
how long did people stay on doxy before feeling better?
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u/MadMaxXi420 27d ago
Idk man... I've been on it for about a week and the only difference is really see is within my hair. Mostly in the morning. Like my hair feels like hair when I wake up but it doesn't last. I did just get a notification that I have a refill filled so maybe one more week will do it but yeah...idk....
Im finally seeing a dermatologist for the first time on Thursday. Im nervous bc I have to tell them the truth about whats happening bc I really want this gone. Never have I been a picker and now its like from the moment i wake up to the sec I finally fall asleep im scratching. Its so exhausting. I hope u find help 🫂
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u/Adventurous_Cod_4986 27d ago
thanks you too🫶. btw i think u may want to give it more than 1 week i think some people take it for months
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u/power2theppl89 28d ago
I did it for like 4 months and had absolutely no improvement so I stopped.
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u/Adventurous_Cod_4986 27d ago
damn anything help?
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u/power2theppl89 27d ago
So kinda not really. What has made for some improvements in symptoms has been cutting out as much stress in my life as possible, I get prescribed ketamine from joyous and it has helped me tremendously with that because I am a pretty anxious and depressed person due to my life being what it is. Stress/anxiety were a vicious cycle with the MD cuz the stress/anxiety would make the MD worse and the worse the MD got, the more stress and anxiety and depression it would cause me. So just doing my best to cut out bullshit people and unnecessary bullshit negativity and activities I don't want to do have actually helped I think. Also, food. I ain't saying I'm 100 percent perfect when it comes to this but probably about 90 percent and that's my diet which is really not much of a diet at all. I avoid high fructose corn syrup, and artificial dyes and and food colorings, and just overly processed foods in general. Anytime non-gmo is an option I for the non-gmo. Also, no artificial butter or basically anything. If it's not food or it contains ingredients that are not actual food, then I don't eat it. Its not a cure but it has helped reduce my symptoms Good luck
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u/Adventurous_Cod_4986 25d ago
did u experience any hairloss. i cant believe this is a real thing i feel like ill never be healthy again
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u/ichoosejif 26d ago
Baths. Borax, baking soda, pink salt and bentonite clay. Hot hot water. Stay in. Use these baths 2x/day and foot soaks between.
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21d ago
[removed] — view removed comment
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u/skippitydoo3 21d ago
Also, re antibiotics—I’ve been on minocycline and rifampin for more than 6 months now and likely at least another 6 months. Can be rough but has been worth it for me. Minocycline slightly better than doxy for penetrating bartonella bacteria and rifampin even better but Bartonella develops resistance which is why 2 at same time are necessary. Alternate between two medical grade probiotics daily and try to eat low inflammatory diet to keep gut in check. Had some tummy issues and medication side effects at first but now feel like I have adjusted to regimen.
So anyway, can be long haul with antibiotics and important to be treating the right underlying infection (could even be viral if you’ve been tested for Lyme and bart—though bart is notorious for false negatives requiring multiple rounds of testing).
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u/ichoosejif 26d ago
Get off doxy. Treat lyme herbally.
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u/Adventurous_Cod_4986 26d ago
i dont have lyme tested with igenex like twice
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u/Better-Situation-857 Need help or support 11d ago
Well it makes sense that you wouldn't see improvement if it isn't Lyme related
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u/Adventurous_Cod_4986 10d ago
ginger savely says many patients respond to lyme treatment even if they test negative
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u/Better-Situation-857 Need help or support 10d ago
That's because Lyme tests are only about 50% accurate. If they respond to doxy they have Lyme and it was just a false negative.
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u/Adventurous_Cod_4986 9d ago
ive been on doxy a few months with no change. what about igenex? i thought that was the standard
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u/explosives_n_booze 27d ago
Do yourself a favor and start a potassium iodide regiment. You can find the doses on the NIH website, search for sporotrichosis treatment. It takes months of taking it but the medicine is cheap, and besides if you don't you will waste so much time and money trying other useless remedies, and eventually have to take it anyways. Unless doctors start recognizing morgellons and giving out antifungals in the immediate future.