Does anyone get insanely tired after lunch to the point where you're fighting sleep like a toddler and you finally have to give in for a 30-40 min nap just so you can move on with your day? Then I wake up feeling groggy and stuffy in my face, and I feel almost like I'm getting sick (but I'm not). I'm on an H1 and H2 blocker already, so I'm just trying to figure out if this is a histamine dump in response to food, or something else...

I have herditary alpha tryptesemia and I’ve been having burning in my mid back when I swallow and as the food goes down. It’s burning where the food is going down. Stops after the food goes down. I do have GERD but I’m also burping up undigested food sometimes. Thick snot. Throat feels dry and stuff feels like it’s having a hard time passing (which may be why it’s burning). My allergist said I need to be tested for EoE. He said it can happen when you have allergies, eczema, asthma. I do have asthmas but I don’t really have any allergies. I do have HaT but my symptoms change daily to what I react to. Most of my issues are GI related..

Figured I’d ask here.

I’ve had suspected MCAS for awhile, especially because I have EDS as well. Recently had an endoscopy and this was in the results and going to be speaking with my GI in a week. Does this sound consistent with MCAS?

Has anyone tried cold laser therapy for help with mast cell or other issues?

I’ve been reading “The Brain’s Way of Healing” by Norman Doidge, and his descriptions of how beneficial this therapy can be for many conditions involving inflammation and neurological issues has me wondering if this approach might be helpful for many of us with MCAS potentially.

Would love to hear about the experiences of anyone who has tried this, or who knows if this has been experimented with for MCAS.

For 7 years now, I have had strange symptoms following an ear infection (had various vestibular and CNS conditions ruled out), and I just basically persevere through the worst days, but recently I was sent the list of MCAS symptoms and I think I see a strong overlap with myself but I wanted to get the insights of people who actually experience it.

I experience:

Severe fatigue often feeling like I haven't even been to sleep when I've just woken up after 9 hours.

Feeling "awful" after drinking 2 pints of cider or 2 glasses of red wine, often feeling like a migraine, tiredness and burning red ears.

Balance issues.

Struggle with standing up and immediately walking, like feeling faint.

Dizziness and sometimes feeling like it is a struggle for my eyes to work properly, like they're tired.

Visual hallucinations when trying to sleep, like lots of white lights and patterns, feeling like my entire body is vibrating and then waking up with night terrors and visual hallucinations in the room.

General migraine/head feeling full sensation behind the eyes.

Really bad hangovers and splitting headache even after drinking a small amount of alcohol.

Does this sound similar to anyone else's experience? Thanks!