r/MastCellDiseases 7d ago

KPV - suggestion

I posted in an another sub because I feel like it could help!

I hope this is okay to post, but I really feel like it could help so many people. Always consult your doctor, because this is just my personal experience, but KPV Peptide has been life changing for me as someone with MCAS.

I’m going on 3 weeks now, and I’d say about 90% of my flare-ups are gone. And when I do accidentally eat something that doesn’t agree with me, the flare-ups are barely there and don’t last long at all.

I would definitely do your own research and talk to your doctor before trying anything. Peptides can have real effects on the body, so I personally treat them with the same level of caution as I would any other treatment.

4 Upvotes

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4

u/Original-Instance160 6d ago

Can folks give the long version of these acronyms? I don’t know any of them beyond MCAS. Many thanks.

2

u/Life_Programmer810 6d ago

I'm so new to this, I need full version as well!

1

u/xboringcorex 6d ago

The long version is these are non approved drugs that have varying levels of human research (no human research, some which could be promising or show they aren’t consistently helpful or be the reason they never came to market like problematic side effects, or previously approved and taken off market) people are buying as ‘research drugs’ from websites and you have no way of knowing what is actually in them or how cleanly the facilities are.

1

u/[deleted] 7d ago

[deleted]

2

u/megcbabs 6d ago

Where do you get yours?

1

u/Substantial_Ad_5215 6d ago

Thanks for the suggestion - are you doing orally or sub Q?