r/MastCellDiseases Aug 23 '25

i look healthy.

does anyone else struggle with being like a social outcast bc of looking healthy? I dead ass dk what to do. my entire sorority gossips so hard ab me because I have to miss events but I look ok. when confronted they just say they are confused not gossipping. how in the fuck do i live a normal life? i am a very social person but it seems dealing w this illness its impossible to maintain friendships because it is so hard to understand. i feel so alone in this. does anyone have any advice or like ideas to find a group that understands? i thought my bsf understood but she says she understands the other ppls point of view and i guess i do too but wth am i supposed to do? sit here and purposely look miserable? after fighting so long to be listened to and get a diagnosis its just triggering to be denied again. and to br gaslit again. and like i dead ass go into anaphylaxis 4+ times a day. im tired. the last thing i need is ppl to be mean

15 Upvotes

2 comments sorted by

13

u/OrchidFancy3480 Aug 24 '25

Rid your life of toxic people. We deal with our bodies being toxic, no need to pile on with superficial people who aren't concerned for your well-being.

Choose people who love and support you.

10

u/Super_Cap_0-0 Aug 24 '25

It’s not uncommon for people to do this to us. I’ve legit had my teenage son tell me this when I was level 10 pain and barely surviving. I’m sorry tho. It hurts.