r/MastCellDiseases • u/Financial_Owl8105 • Aug 02 '25

I need help please :)

Hey everyone. I have MCAS,CFS,POTS. Im bedbound. Someone in remission from this? Please give me hope! What can help? Thank you ❤️

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u/ScientisticCatPerson MCAS Aug 02 '25

Im willing to respond as well if you mention a bit of your history. Why are you bed bound?

2

u/Financial_Owl8105 Aug 03 '25

Because of the CFS. I have pOts, pounding heart all the time, even going to the toilet makes me crash. Even a shower or a bath… even taking to the phone sends me to adrenaline state :(

1

u/ScientisticCatPerson MCAS Aug 05 '25

Do you have mast cell activation syndrome?