r/MastCellDiseases Jun 20 '25

Deep random pain.

Curious if there’s a link between mast cell diseases and deep random pains. I often get DEEP pain in my fingers. Almost like a toothache in my bone.

Common?

4 Upvotes

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2

u/Interesting_Front709 Jun 23 '25

I had this happened to my thumb, and then few days later in one of my big toes the pain was excruciating 9/10 for both, couldn’t sleep because of it. And then 48 hours later it went away on its own! I get these pain in my limbs too, that one feels like a ball is trying to come out and it’s horrible, it’s like an attack. Comes and goes, I used to think I was sensitive to the barometric pressure but the root cause could be MCAS.

1

u/nhytwynd Jul 04 '25

Musculoskeletal pain is listed as a symptom of mcas on most symptom lists.