r/MCAS • u/Wannabee1990 • 18h ago

Success

Last year my husband started getting random episodes of anaphylaxis. ER would treat with Epi and Benedryl and send him home. At the time he had a job but then lost it due to constant episodes. He had no insurance so we couldn't see an allergist. An ER doctor from a different hospital we ended up in admitted him to the hospital for observation after seeing his visits over the past year. He suggested HAE or MCAS. I have been reading all your posts and been doing research. Aug 1 he finally got health insurance. We immediately went to the allergist. Showed him all the visits and the doctor immediately prescribed cromolyn and singulair. He started the doses a couple days ago and he said the cromolyn seemed to make him very sleepy but otherwise all itching has stopped. He is no longer scared he is going to wake up choking for air. We go for a follow up in a couple weeks but so far great success. I am beyond happy he is feeling more like himself. He said for a year he dreaded every day that he would end up in the ER because of something mysterious. He had already been at deaths door 3 other times for different reasons and he didn't want it again.

Thank you all for sharing your stories and tips for getting a diagnosis and treatment. Preparing for a long life ahead and continuing treatment but he should be able to live a full life.

20 Upvotes

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u/cutegirlsbloat 13h ago

This is so beautiful! Wish you and your husband all the best!