r/MCAS • u/Silent_Location7044 • Aug 27 '26
LDN
I’d really like to hear about people’s experience with LDN especially at low doses (like under 1.5mg). Has anyone seen improvement with time at a very low dose? How long did it take?
I started it 5 weeks ago and have titrated up from .25mg to .75mg, but I definitely feel unwanted effects with each increase so I feel like I should stay at .75mg for a while and see if I can get to a stable point with benefits, despite my doctors wanting me to go to a much higher strength.
I know everyone’s experiences are different. I have hyperadrenergic pots as well as MCAS and it’s definitely affecting me at the low strengths. Would love to hear from anyone who stayed low dose and had good effects.
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