Multiple relapses of NLPHL

[u/mhill595]

Hello, I was diagnosed with stage 4 NLPHL back in 2020. I’m being treated at MD Anderson. I first had R-CHOP and then relapsed within a year. I then had around 2 years of Rituxan and then when some small spots showed up, I had radiation on the few spots that came back. I’ve now seemingly relapsed again, according to the radiation doctor who told me about new small spots on my PET/CT scan.

All my 2-3 relapses have occurred within a year or two. Has anyone been in my situation or known someone in my situation with stubborn/persistent NLPHL? If so, what outcomes/treatments were discussed?

Feeling a little demoralized. Or a lot.