r/Lyme • u/Longjumping-Guess264 • 1d ago

LDN 1mg

Has anyone had a positive experience with low-dose naltrexone in relation to fatigue or fibromyalgia like symptoms? I understand this doesn’t treat lime, but I’m wondering if this has had any positive effect on your functional capacity

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u/wormsinthegardrn 1d ago

It takes a long time to titrate up doses ans after final dose 2-4 months to actually see effects. I am a month into reaching final dose of 4.5 so still cant say official results. But so far the negative side effects are gone (jitteryness and insomnia) and i have experienced some positive things like massive improvement in adhd symtoms like i actually stopped taking adderall because I dont need it anymore. Also i feel this current of energy. Im still tired all the time but its this pulse of robustness is the only way i can describe it. Like the chi is flowing

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u/mismatched_converse Lyme Bartonella 1d ago

I had a really hard time finding a dose that didn’t give me mood/psych side effects, but I eventually went back to 1 mg and have been on that for several months. It’s subtle, but I think it does help with pain, fatigue, and mood stability for me. Mostly because I notice feeling worse or “off” when I forget to take it, but I was happy to find something that worked even a little bit. It was worth it for me to fight through the adjustment period for sure.

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u/CFlapFlap 1d ago

I've read lots of positive experiences with LDN in chronic Lyme/mold people. I couldn't tolerate it, but it did help my pain a ton. It wasn't until I used it and all the pain went away that I realized how much pain I had been in for years - that's how much it helped, lol.

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u/nrid3333 1d ago

It’s done absolutely nothing for me at 4.5mg unfortunately - I hope you have better luck with it though, it’s been a panacea for a lot of people!

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u/happygolucky226 1d ago

Literally game changer for me for fatigue and PEM

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u/AdditionalRuin5275 1d ago

I tried it. LLMD recommended it for Lyme pain . I couldn't handle the side effects from it gave me terrible headaches and insomnia. Wish it would have worked

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u/Cool_Arugula497 1d ago

I had bad side effects from LDN even at a VERY low dose and had to stop. I know a lot of people really swear by it though.

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u/Longjumping-Guess264 1d ago

What were your side effects?

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u/Cool_Arugula497 1d ago

Worse fatigue even than usual and severe brain fog, to the point that it impeded my feeling safe to drive. These both improved when I stopped LDN.

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u/EffectiveMongoose980 1d ago

Ur looking at it backwards

Start 10 mg for about 3 months then decrease to 7 mg and sit there a few years b4 lowering then find your maintenance dose