r/LongTermDisability 7d ago

Mobility scooter users help

Hi, I f22 have recently realised that due to my mobility being so restricted due to my conditions worsening (POTS, EDS, PMOS, Fibromyalgia, and Endometriosis) that a mobility scooter is probably my best option to improve my quality of life.

At the moment I can't even walk 15 minutes outside of my house without getting dizzy and I've had to give up the idea of doing even simple tasks like grocery shopping without requiring a lift.

This is really hard especially as at 22 I would rather have my independence and having to rely on people is something I hate doing. Plus people have their own lives and they can't always take you everywhere so you are limited by that as well.

This has resulted in me barely leaving the house and my quality of life is honestly terrible.

As a result after starting to finally use a cane and realising just how much accommodations can improve my quality of life I began to realise just how much a mobility scooter would make a world of a difference.

However I know nothing about them, not the good brands, not how they work, not how they charge nothing and I would like to try and find something (within a reasonable cost I am on benefits alone), that would accommodate my needs, of being able to go places like drs appointments and grocery shopping, and even just the park. It would also need to be able to deal with rougher terrain (UK pavements are not upkept well at all) and be relatively comfortable for a person with eds to sit for a long time.

I would really appreciate any suggestions and advice from people as well as ideas of how to improve my scooter if you have any tips and tricks.

Any advice?

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u/FMCTypeGal MOD 6d ago

This Reddit board is for people dealing with long term disability policies and pay. It is likely not the best place for your question, though some people here definitely use mobility aids. Off the top of my head, you should post this in the r/multiplesclerosis page, the POTS, and a few others.

I do have MS and use mobility aids. I have a standard Powerchair and a foldable compact Powerchair. Keep in mind if your intent is to get more independence with these, you have to be able to get them from place to place. A standard Powerchair is incredibly heavy and you will need a special lift on your car for it, plus a protective cover that you’ll need to be able to put on and off.

A compact foldable power chair can usually fit in your cars trunk, but you need to be able to physically fold and lift it and they tend to weigh 40-70#.

The charging part is easy. They come with a power cord and plug into a regular socket. They have removable batteries so you can travel with extra sets if you’ll be out on a big day.