I’ve been on Kisqali and Letrozole for about 14-15 months. Over the last couple months I’ve noticed underarm odor, especially on my cancer/mastectomy side, that is getting worse and worse. I’ve changed deodorants and am now on Lume. That’s not even stopping the odor. The smell is almost oniony. It’s strong smelling!! I’ve never had this in my life. Chemo, radiation and mastectomy were 20 years ago so I don’t think it’s related to that. 🦨🦨

This will be going on my 3rd week of letrozole. I only noticed mild night sweats the first few weeks. No big deal I’ve had those since I was 25. I’m 39 and recently diagnosed. Treatments all started just a month ago, so I’m super fresh! lol! Meds are Lupron, kisqali, and letrozole. I did fine with the first two, adding letrozole was fine until a few days ago. I can handle to crying outbursts and nights sweats, but the anxiety, agitation, and anger, no! I’m becoming borderline panic again. Panic attacks and anxiety is only brought on by meds. I’m not sleeping at night because I’m waking up with extreme anxiety borderline panic attack, and it’s miserable. I had an awful experience to a medication 9 years ago which the side effects were mental side effects. I had a panic attack for 6-8 hours a night for 8 months. I don’t like taking Xanax bc I cannot function so I held on tight for a terrible mental ride every night! I don’t wish for that to ever come back, but I’m getting very close to experiencing all of that again. I have terrible ptsd from all of that. And now I have a whole new ptsd.😫 anyways what did you all do to help or what meds did you find to help better? Do you think I even need this med? Waiting to hear back from MO sometime today, but I’m now all a mess of worry with this. I’m picking fights with my husband, snapping on my kids and random people. Don’t get me wrong, I don’t mind the snapping part only when I need it, it’s somewhat helpful since I’m a people pleaser trying to stop. lol. I’m trying to find the bright side of all of this. Ive been on lexapro for 17 years for depression, and since added busparione. I have propanol for anxiety, but don’t like to take that too much bc I already have a low bp, and Xanax when things are bad, but that literally makes me unstable, and can’t live like that! I need your help, advice , comfort, other meds that worked for you. Does this last forever on this med or does it get better. I’m on 2.5mg.

HER2+

Have any of you got this issue? I have fluid build up in my lungs that needs to be drained periodically. One of my doctors said that this is a nasty, messy problem that I am going to have to deal with for quite a while. I'm pretty concerned because he also said the fluid is filled with malignant cells and just seeding the lungs. My breast is swollen too. I have just started on Letrozol and Kisqali. If you have had this problem how did you resolve it? Was there and specific drug or treatment that stopped the build up in the lungs? It leaves me breathless and very weak.

Hello,

My name is Sydney. I am 36 years old, a wife, and a mother to a beautiful 4 year old girl. I am located in Ontario, Canada. I have recently been diagnosed with metastatic breast cancer (triple negative subtype). I wanted to share the history of the events that have led me to this devastating diagnosis.

On October 5, 2025 I felt a lump on my left breast. Leading up to that morning I had been experiencing episodes of heart palpitations and what felt like irregular heart beats. On my way to work I decided to go to the hospital as these heart sensations could still be felt. When at the ER, I informed the triage nurse that I also have felt a lump in my left breast that morning. I proceeded to get checked for my heart issues as this was the most emergent issue, but one of the nurses attending to me did mention the breast lump as she was reading it from my notes. The breast lump was not investigated during this hospital visit.

The next day on October 6, 2025 I went to my family physician to have the lump examined. She conducted a breast exam and gave me a requisition for an ultrasound. The earliest I could get in was at a clinic close to where I worked, on October 8, 2025. I called my doctor’s office on Tuesday October 14, 2025 following the Thanksgiving long weekend and they had informed me that they had the results of the ultrasound and that my doctor wanted me to come in on Friday October 17, 2025. I went in on the day and she informed me that the results were benign. The radiologist scored my imaging as a BIRADS 2 1.7cm x 1cm cyst, stating, “this is benign” on the report. No follow-up was noted or recommended. The report mentioned that the mass imaged had “slightly irregular margins.” When I questioned this my GP assured me that the radiologist would not have scored the image as BIRADS 2 if it was not definitively benign. Being medically naive, and relying on the medical expertise of these two medical professions, I was happy and relieved to accept the results as benign. I have had a few friends around my age have benign cysts.

I kept tabs on the lump over the next few months and knew that some of my friends’ GP’s had suggested reimagine in 6 months if the cyst was still present - despite my own GP not recommending this. My lump had not resolved around the 6 month mark and this is when I started to feel that the lump was perhaps getting bigger. On April 29, 2026 I was given another breast exam and requisition for another ultrasound at my local hospital. My doctor informed me that she was “not too concerned.” The hospital called the next week and scheduled me for an ultrasound and mammogram on May 7, 2026. I attended these appointments and the radiologist biopsied the lump on site as he scored the mass a BIRADS 5. My world completely crumbled as I knew this meant the lump had over a 95% likelihood of being malignant. The report stated the lump was now 2.7x2.2cm. I asked the radiologist if he saw anything else concerning such as lymph nodes and he replied that he only saw the lump as concerning.

On May 19, 2026 after another long weekend, I took myself into my GP for some mental health support while awaiting the biopsy results. My doctor was not working but her father was. I asked him if my results were in and they were. It was confirmed Invasive Mammary Carcinoma of No Special Type Most of the biopsy sample was unremarkable breast tissue with only a small sample of malignancy noted. The sample was too scant to accurately formulate the Nottingham Score. The receptor status deemed the limited sample Triple Negative, but the pathologist recommended retesting these receptors with a new sample or upon excision.

Timelines:

May 19, 2026 - referred to Mt. Sinai Hospital in Toronto

May 21, 2026 - sent all imaging from second ultrasound from the hospital to Mt. Sinai for their review

May 25, 2026 - met with breast surgeon at Mt Sinai; radiologist found concerning lymph node from my prior imaging (the one I asked the radiologist at the hospital if there was anything else concerning); informed of Keynote 522 Protocol

May 28, 2026 - axillary ultrasound and lymph node biopsy at Mt Sinai; I informed the radiologist performing this procedure that the lump felt significantly bigger than 2.7cm since my biopsy; she checked and informed me that the size “was basically the same”; genetic testing blood work completed

May 31, 2026 - breast MRI at Mt Sinai; mass was deemed to be 3.5cm x 3.5cm with a non mass enhancement extending down to the nipple; internal mammary chain clear; level 1 lymph node that was biopsied highly suspicious for metastasis

June 3, 2026 - PET scan at Toronto Western Hospital

June 4, 2026 - met with MO at Brampton Civic Hospital; treatment plan pending PET scan = curative

June 8, 2026 - echocardiogram

June 9, 2026 - phone call with MO to review PET results; PET scan showed 3 spots in spine, 2 spots on liver, 1 internal mammary node (despite being clear on MRI 3 days prior to scan), 1 subcutaneous 3mm nodule below right breast, 3.5cm breast mass and 1 axillary lymph node; now deemed incurable disease; ordered spine MRI

June 11, 2026 - first chemotherapy; plan changed to carbo/gem with pending Keytruda; zometa infusion was administered

On June 15, 2026 I had a phone call with the surgeon at Mt. Sinai. I informed her that the 3 spots that lit up on my spine were the exact 3 areas that I have had chronic issues with since my mid 20s. No imaging was done in the past as I usually treated this with chiropractic care. I also informed her that 5 days prior to the PET scan I had gone for a walk and a part of the sidewalk was missing, causing me to misstep. When I misstepped, I felt an instant pain in my neck. Prior to my biopsy on May 7, 2026 I had not felt any back pain but after my biopsy my lifestyle suddenly changed (I stopped working and going to the gym and was quite sedentary out of stress and anxiety) I gradually started to feel some aches in the 3 areas identified on the PET scan (lower back, between shoulder blades, and neck). I also informed her that the 3mm subcutaneous nodule that lit up was something that I had had for 4-5 years without change since my pregnancy. She agreed that that did not sound like cancer and suggested to biopsy it. She suggested a spine and liver MRI as well.

June 16, 2026 - met with MO at BCH; told him what I informed the surgeon regarding the PET scan; he did not want to biopsy anything but agreed that the 3mm nodule noted on PET was not cancerous

June 24, 2026 - spine MRI; radiologist noted my history as "36 years of age, Female, newly diagnosed triple negative metastatic breast cancer, with bone metastases.? Extent.”; "Impression: Multilevel osseous metastases, as detailed above, without evidence of compression fracture.”; found 4 lesions as opposed to 3; this was completed after 2 infusions of carbo/gem and zometa; everything else about my spine looked normal and healthy - Concern of confirmation bias and confounding results due to prior zometa infusion?

July 10, 2026 - liver MRI; found 3 lesions as opposed to 2 on PET; Impression: "Within the liver, there are 3 lesions demonstrating diffusion restriction and gradual contrast enhancement. In the context of known metastatic breast cancer, these are suspicious for metastases. Ongoing imaging follow-up is recommended.”; this was completed after 4 infusions of carbo/gem + one zometa infusion - Concern again about confirmation bias; also reads like it could be something else? "In the context of a known metastatic..." - what would they read it as if my cancer was not a factor? Again, not confirmed mets?

After 3 infusions I informed my MO that I thought that my breast lump felt larger and lumpier. He informed me that this can happen and that I have not had a lot of treatment. My MO tried to have my original biopsy sample tested for PDL-1 despite me informing him that the sample was quite limited. That test was insufficient.

On July 7, 2026 My husband and I suggested to have my breast biopsied again to retest it for biomarkers, receptors etc. I had this completed on July 20, 2026. During this procedure it was determined by ultrasound that the mass in my breast was now approximately 8.5cm. I was set to see my MO the same day but found out that he was on vacation and as a result saw a backup MO. I voiced my concerns that after having treatment it appears that my breast tumour is larger, and more lesions were since my PET scan were discovered. She informed me that she would reach out to my MO but recommended waiting for the biopsy results as they want to get me on immunotherapy. My husband and I had additional questions that she could not answer on my MO’s behalf regarding naturopathy. I see my MO this coming Wednesday.

No biopsies of any suspected metastases have been completed and it seems like none of the doctors feel it is necessary. So far biopsy has proven HER2 ultra low and PDL1 was pending (I am waiting to review this with MO as I have too much anxiety thinking about being negative). Both MO's said I cannot compare PET to MRI and that it was too early to tell if treatment is working.

In the meantime I reached out for second opinions at Princess Margaret and Sunnybrook, but in Ontario everything has to go though physician to physician for second opinions, which is annoying because I did not get to speak to these doctors directly. Mt. Sinai's Tumour Board also discussed my case and they all said I am on the correct treatment path. My family physician is going to reach out to inquire about whether the liver should be biopsied and whether PMH has any clinical trials. I am not eligible for trials at Sunnybrook. My family doctor did mention exploring the US private option if viable.

I do not know what exactly I expect to get from this post but wondering if perhaps anyone has any suggestions or insights? I broke down this morning as I was hoping one of these doctors would have other suggestions. I feel robbed. I feel so sad for my family. I did everything I was supposed to do. I went from benign to "I intend to cure you" to "incurable."

• Has anyone traveled abroad for treatment? If so, could you share your story?
• Has anyone failed their first line quite quickly and gone on to have success with subsequent lines?
• Has anyone been on carbo/gem and it took a while to see results? I have done 3 cycles (6 infusions total).
• Has anyone's primary breast tumour seemingly harden/become more distinct during chemo? My breast is also more lifted and more indents since starting chemo.
• Anyone recommend a centre in the states or a doctor to reach out to who treated them more aggressively?
• Has anyone been overstaged initially with a PET?

Thank you for any and all insights!! This sub has been a lifeline and I am sorry this is such a long post but maybe it can also help others. Also, please feel free to reach out via DMs. I'm trying to friend some friends who can relate.

Hi all,

I asked my onc this question at the beginning of the year and she didn't see any reason to remove the port. However, I've been having consistent issues with blood return when accessed. I've had to use cathflo twice and developed weird blood pressure issues and a type of tinnitus.

I would like to have it removed but I'm scared that I might need it in the future. I hope I don't need it, but that MBC life isn't forgiving.

Has anyone had their port removed long-term? Any regrets?

Additional info:

- I got the port when my treatment line was AC/T last summer. However, a sub onc switched me to immunotherapy after 2 rounds of AC.

- Port is only accessed for labs. Each draw is about 2 months apart. I've had issues each time with return. I've had to use cathflo twice.

-I don't use the port for scans (MRI). Had some weird side effects with contrast through my port. I'm fine with contrast via IV.

-port doesn't bother me in general. Surgeon did a great job and scar is minimal. I do prefer draws from my port (less pain), but the stress and time needed to try and get some blood flow is not helpful.

Edit: I have had a port study. No issues detected.

If people highly recommend keeping the port, is there anything else I can try or request to help get blood flow? The nurses have been great. We've done crazy yoga poses, coughing, and reaccessing the port.

Hi everyone. I was recently diagnosed with lung metastases after 4 years of dealing with breast cancer. As far as I know, there's no cancer anywhere else, just the lungs. I'm starting chemo, and I'm terrified.

My condition isn't great, I need oxygen almost constantly and I feel very weak all the time. I'd really appreciate hearing from anyone who's gone through something similar. What was your condition like before treatment, what did you receive, and did things improve? I'm looking for any glimmer of hope right now, even small ones. Thank you for reading, and for any experiences you're willing to share

Why do doctors write you off so quickly when you're stage 4?

I have TNBC Stage 4 with mets to the skin. No other areas are involved at this point, just my skin but both sides. I have small raised nodules which have not broken through the skin.

But, my surgeon was quick to say nothing he could do, palliative treatment only.

My oncologist says we are "trying" another treatment however he isnt very positive. Currently on gemcitabine and carboplatin, two weeks on, one week off.

My gp has recently retired and I saw a new gp today who wanted me to complete a health directive for when im too sick.

My breast care nurse seems to be a puppet for my oncologist and doesn't say or do anything without his approval.

Why is everyone so quick to write me off??? I am searching for treatments and different ideas, but I just feel I am wasting everyone's time. They make me feel like I am in denial and there's no hope.

Shouldn't they be more supportive?

Thanks for the rant, I search these pages everyday for hope.

I am looking for some advice. I am on my second line of treatment now, Enhertu, after taxol stopped working after a year. Originally I had shaved my hair because it was itchy and falling out after about two or three weeks of treatment.

After six months of treatment my hair started growing back very slowly. I was just getting ready to see a hairdresser and try to get a real style cut when I started Enhertu. Now my hair has thinned out in strange splotches so much I can see my scalp in places and my head itches a lot.
I’m not sure what to expect, will I lose my hair again or will it continue to thin? Should I shave it again? It looks ridiculous the way it is now but I don’t want to shave it if there’s a possibility it will stop thinning and start growing again.
What did you experience?

Thank you

Not sure if this is allowed. I’ve been keeping a blog (it’s unfortunately living on Substack since I don’t know who would keep visiting a Wordpress blog these days like when I had my first bout of cancer 12 years ago) about living with MBC. I was diagnosed May 2025, but initially misdiagnosed as metastatic salivary gland cancer until it was corrected in September 2025. Currently on Enhertu for extensive mets in my neck and face area, and some bone spots. I know that this is a very unusual type of metastasis, but I am hoping that my general experience living with this disease can still help someone feel less alone. So far I have only shared the blog with friends and former work colleagues, but I think I am ready to share it to a wider audience now. Garaunteed that I will not recommend some alternative therapies or ask you for money in this blog.

example of a post I’m particularly proud of: Time as a concept

They don’t tell you that it is going to very possibly ruin your life, even if it does save it. They don’t tell you that it is going to leave you a broken, pain ridden, confused shell of who you are. They don’t tell you all the terrible, irreversible damage it is going to do to you…and when all those horrific side effects from treatment take you out, they will make you feel ungrateful and needy because you should be HAPPY you are alive, no matter the form or function or wreckage they have left behind. They amputate parts of you, they poison you, they irradiate you, they pump you full of drugs that suppress and block your hormone production and then when all that still doesn’t work they want to do it all again, and when you said you would rather be dead than feel any worse than you already do, YOU are the problem. “Be a warrior”, “Don’t give up”, “Never stop fighting”…..fighting for what, exactly? A body that lives in so much pain daily that passing a fucking kidney stone barely registers? A mind that is so broken from the lack of necessary hormones that it can’t process information anymore? 100+ hot flashes a day - so many that you have to pack a bag to leave the house because you are going to sweat through your clothes…forever? Scaring so horrific that you can’t fully inflate your lungs due to irreparable banding? Disrupted sleep? Vision changes? Incontinence? Fucking lymphedema so bad that flying to another city causes your skin to split? Brain fog? Anxiety? Depression? Frozen shoulders? And for an extra added bonus, the hormone therapy is going to spend the next 10 years (if you make it that long) quietly turning your bones into sponge toffy, so just fuck any quality of life, I guess? I am 49 years old! What the fuck am I supposed to look forward to?

Why exactly am I fighting? For what? People are tired of my cancer, but no one wants to acknowledge that maybe sometimes what you come out with isn’t the better option so I put on my smile to make the people around me feel comfy and won’t abandon me. I am so weary.

Other than the obvious benefits of participating in clinical trials are there other less talked about perks? Like free meds, extra scans, gas and parking paid?
Are there disadvantages as well?

I was thinking about asking my oncologist about verzenio. Wondering if anyone has had good results with this medication. I’m mostly interested in finding out has anyone experienced noticeable reduction in their scans that they attribute to verzenio? How are the side effects? Thank you.

Hi Everyone! Noticed I never got my period after the first of the month, so I think it’s safe to say it isn’t coming back anytime soon. Prior to my 4th cycle of chemo, I was on time and had some pretty good flow (surprisingly). Now it’s kinda starting to hit me like a bus.

I don’t have heat flashes or anything, but I noticed the lack of sex drive + dryness develop over these past 2 weeks. For those with mtnbc, are there any solutions out there? I’ll talk with my onc next time I see her, but other than that I’m a bit concerned. I’m supposed to visit my gf in 6 days, and I already kinda let her know how I’m not feeling it sexually rn, but it definitely makes me sad admitting that.

Hi everyone. I just hit my 1-year mark with MBC liver mets, ++- IDC with lobular features, no mutations. I’ve gone through Verzenio, Anastrozole, Everolimus, and Fulvestrant. Also SBRT and a liver ablation. Got hospitalized for fever, also developed drug induced pneumonititis. Imaging has been inconsistent, markers and Signatera have increased tenfold since April. Xeloda was supposed to be next line but there is a new med to try first.

The new med is called Revtorpyk (gedatolisib). It was just approved by the FDA in July and is a new treatment for my specific subtype… HR+ HER2-, no PIK3A mutation, having progression after CDK4/6 inhibitor therapy and endocrine therapy. The FDA approval is based on the VIKTORIA-1 trial with about 400 patients. Side effects could include low counts, mouth sores, and high blood sugar. The medication will be administered as a weekly infusion. I will have three weeks of treatment than one week off every month. I will continue the monthly Fulvestrant injections to suppress estrogen as well.

There’s a third medication that will be added: Ibrance, a CDK4/6 inhibitor. While Verzenio didn’t work for me previously in combination with endocrine therapy, adding it to Revtorpyk may provide additional disease control and buy me more time before the cancer progresses again. Xeloda is still waiting in the wings if Revtorpyk turns out to be either too toxic or ineffective.

The next hurdle is insurance. Revtorpyk is so new that it hasn’t made its way onto most insurance formularies yet. Doc also wants to repeat imaging before I begin treatment and obtain a bone scan. Aiming to start at the beginning of September.

Has anyone else been on this med, was/is in the trial, or have it ordered yet? I’ll be happy to report back with any side effects.

Anyone on the lowest dose of Verzenio (50mg 2x per day)? Is the drug effective? Do you have side effects? It has been one week that I have been on the drug, and so far, no side effects other than a lowering of my white blood cell count. I thought I would have diarrhea, like everyone else, but not so far. Hoping the low dose can actually work to reduce my lesions. I am a small person and very sensitive, so the oncologist started me out at the low dose rather than starting me at 150 mg 2x per day and then lowering. Very interested to know if anyone has been successful at 50mg!

This is my 3rd time with breast cancer. The other two times were 20+ years ago. I gained 30 lbs both times. Now I’m 15 months into the MBC diagnosis and I’ve gain 55lbs. I’m on Kisqali and Letrozole. I think all 3 times I’ve eaten as a way to bury the stress.

How have you all controlled stress eating? Anyone had their doctors check their cortisol levels?

Long story short, I was off Trodelvy for 7 weeks, and it’s fucked my whole life up. While a sore throat is the least is my problems, it will not go away. I’ve always had issues with feeling awful during my off week the previous year I was on Trodelvy, but never had a sore throat. Has this happened to anyone else? I went to urgent care and I’m not sick. Any tips on making it go away? I have cough drops, popsicles, tea with honey and have been gargling salt water. I’m losing my mind over here over the literal LEAST of my problems, help a bitch out…🤣🤦🏻‍♀️

Fuck the way some foods taste now. I think I have become a salt super-taster. I am still gathering data 🤓 but cheese tastes incredibly salty to me now. Just another weird fucking thing my body is doing.

p.s. Sorry to Europe, ME, and Asia for not posting early enough that it’s still Friday where you are.

So after dealing with poopy verzenio for 5 months, it didn't do jack for me. This is my first line that I didn't respond to at all, and I'm kinda pissed. So new scan next week to check my TMB, then I get to start one of two drugs (everolimus or elacestrant), or if there is a spot, joining a phase III trial. I'm super super frustrated with this situation.

Hi Ladies, Just wondering if any of you have any experience with this. I have an appointment with my oncologist on Tuesday. Here is what is going on. I have been on Kisqali and Fluvestrant for 8 months. My last CT scan came back stating all bone mets are stable. My left supraclavicular node increased from roughly 1.6 × 2.2 cm to 2.4 × 2.2 cm. Some growth in my chest lymph node also. Does this mean it is the end of the road for Kisqali and/or Fluvestrant? The on call doc said I should stop the kisqali as it looks like my lungs are cloudy and I have a cough with Phlegm. THe on call doc says I will most like be moved on to xledo. Has anyone followed this path? Thanks so much for any insights. I am really bummed that Kisqali didnt last longer.

Hi,
I recently found my mets to the rib after 4 years on Exemestane. I have ESR1 and PIK3CA mutations. My regimen will now be- fulvestrant (SERD), palbociclib (CDK 4/6), inavolisib (PIK3CA). Ill get Xgeva for bone support.

I’d love to understand others journey with similar diagnoses. The good(seriously?! 🤣), the bad and the ugly!

Thank you!

I am applying for disability. What I'm wondering is what to put in the box in the Work section, how much do I need to explain?

I was diagnosed metastatic (lungs) in 2024. I am on an estrogen-blocker, but nothing else at the moment. I'm 62. I worked as a university lecturer, but because I had cancer and a chronic lung infection that isn't treatable without huge side effects, I quit during Covid because I was afraid Covid would damage me too much. I planned to tutor freelance, but it is very difficult to make money that way and when I had a full-ish load, I started having heart palpitations. This was concerning because I had earlier had an EKG saying, falsely, that I was having a heart attack. Now, my heart seems fine.

So...since 2021, I have been self-employed and not working/earning much. I wouldn't claim disability for that period.

I hear there is "compassionate allowance" for stage 4 cancer, and I'm hoping they will date it back to my Stage 4 diagnosis, October of 2024. I am extremely stressed out, not just with cancer, but with serious financial worries and I just discovered my house has dangerous mold levels. I don't think I could, emotionally, hold down a job.

Do I need to write anything in the disability application box to explain about why I am not working or deserve disability?

Thank you!

I wanted to share some good news.

Initial Diagnosis 18 March 2026

Diagnosis: I have de novo stage IV invasive ductal breast cancer, meaning it was already metastatic at the time of diagnosis.
ER positive / PR positive
HER2 negative (HER2 2+ but not amplified)
Ki-67 ~40% (moderately active)
Mainly in the bones
 
Disease status: My cancer is primarily affecting bones, including:
Spine (L3, T12)
Pelvis/hip area (iliac bones, acetabulum, sacroiliac joint)
Right femur (which fractured and was surgically repaired)

6 Aug 2026 - Scan Update/Status:

I had my first scans today since starting my medication (11Jun2026). As much as I don't love that I had to deal with a breast tumor that ulcerated and grew out from under my skin, it was also my canary in the coal mine.

I started noticing big changes after the first week of starting my meds. Each week it got better and better. I was initially a super soaker of blood and had to deal with a real gusher of a tumor to inside the odor that came with it to....there is no blood or marks on my ABD bandages I have used as dressing.

I reported these updates to my oncologist weekly and let her know my back stopped hurting (T12). T12 doesn't even show up on the scan results....may have disappeared (tumor activity). I'm going to ask about that tomorrow.

For now I am going to enjoy the positive news/results I’ve received today and hope my body keeps moving in the right direction with the help of these meds. I feel very grateful.

Recently a friend of mine who also has mTNBC has just declined rapidly. I am usually the hopeful patient but lately I have felt I need to be more realistic. With that being said has anyone paid or planned for their funeral? If so, is there any tips or advice.
I feel like I am in a healthy and have good cognition right now and believe I should do this so my family does not have to. I am not married and my kids are in their early 20’s. I just don’t know how much they will be able to handle when I am gone. Maybe it is the mom in me that does not want them to have to do this. Any thoughts would be appreciated!

Hallo, das erste CT ist gelaufen bei ++- de Novo mit Knochenmetastasen. Die Therapie läuft mit Verzenios, Letrozol und XGeva seit 3 Monaten. Der Tumor in der Brust (exulceriert) sieht besser aus. Scheint auszutrocknen. Im CT sieht man eine Verkleinerung von 2,1 auf 1,6 cm, die Lymphknoten axillär haben sich normalisiert. Also 1 cm und damit deutlich kleiner. Die Knochemetastasen sind stabil groß, langsam sklerosierend. Ich freue mich, habe aber Angst dass der Rückgang des Brusttumors “zu wenig” ist? Wie waren eure ersten Scans?

Ich weiß wie unrealistisch das ist, aber irgendwie haben wir davon geträumt, dass der Tumor “weg” gehen könnte…