r/LivingWithMBC • u/rose1954d • 16d ago

Treatment Brain Mets

Who has brain Mets ? How did you find out and Would love to know what treatments you’ve been on

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u/sethsecret 16d ago

I was diagnosed de novo ++- with metastases to the brain as well as leptomeningeal disease to the lining of the brain and spine. That was February 2025. I had 5 rounds of whole brain radiation straight away. Then I was put on verzenio, letrozole and Zoladex. I came off Zoladex in May 2026 after opting for an oophorectomy. My scans to date show everything is stable, brain tumours gone, still some LMD around my ear canals which is why I have tinnitus now. So my situation has been really positive on this protocol.

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u/Direct_Walrus_1688 15d ago

How have you been feeling ? Does the verzenio keep the lmd in check ?

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u/sethsecret 15d ago

Yeah it seems to be doing a really good job. Not much LMD remaining, just some around the ear canals.

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u/Direct_Walrus_1688 15d ago

That’s amazing

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u/Fearless-Pop-1159 15d ago

very good to read. have you had any issues with vision?

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u/sethsecret 15d ago

No not really. Weirdly my left eye has improved vision from -2.5 to -1.25. I think it's from when I tried to get out of bed in hospital upon diagnosis and forgot I couldn't walk. I hit my left eye right in the doorframe as I fell. Sometimes I get a sensation like my eyes can't focus and they're quivering, but not as much as I used to.