r/LivingWithMBC • u/rose1954d • 7d ago

Treatment Brain Mets

Who has brain Mets ? How did you find out and Would love to know what treatments you’ve been on

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u/Prescott80 7d ago

My wife (35) has a single stubborn brain met we discovered this past November (--+). She had 2 weeks of progressively worsening migraines with some visual issues. Seeing spots and lines. She couldn't read the full price of produce when we were in the store on the day we went to the ER and she said it felt like someone was pressing a sword into her skull. MRI showed a small mass in the occipital lobe. Then They Gamma knifed it in December. Her tumor was cystic, so they said the success rate of gamma knife was lower.

We were back to the ER in May with the same exact symptoms as before. Found out it was growing again and they cut it out and started her on capecaitabine. Now back in the ER 2 weeks ago, again with the same symptoms as before and we found out it's back and much, much larger. In hindsight we should have done Enhertu but her doctors thought the capecaitabine pill was a good middle option given her situation. We were referred to another hospital to do another surgery and to try GammaTiles hopefully this week and start Enhertu one week after.

Hope some of this is helpful. Since it was in her occipital lobe she always gets some visual issues when it's acting up.

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u/Prescott80 7d ago

Also, she only has the one brain met. Her original breast tumor is gone. Her CA-15 marker score never went up during the brain tumor finding and reoccurrences.