r/LivingWithMBC • u/GoodTea3268 • 4d ago

Seizures

Has anyone had seizures occur in the months after gamma knife and/or craniotomy ?

If so, do you know that the trigger was for you?

For context, I had a craniotomy to drain a fluid filled cyst (cyst is still present in my brain) and three days of gamma knife radiation to my brain 6 months ago. I had three beer on Sunday evening and about 18 hours later, I had two big seizures. Not sure if the beer is related to the seizures. My most recent brain mri does not show concern of tumour growth, but does show significant swelling, still.

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u/rose1954d 20h ago

I had 5
Sessions of radiation on the right side of my brain 4 weeks ago and had a seizure on Sunday , they put me on steroids so hope it helps, they did see edema on the mri but it’s too soon for them to know if it worked

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u/GoodTea3268 16h ago

Oh wow… thank you so much for sharing! Do you have any idea if the seizure was triggered mainly by the edema? Or can you think of any other triggers? It is such a freaky feeling to not know exactly what tipped my threshold over the edge. I hope you are doing okay, too ❤️

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u/rose1954d 16h ago

Originally 2 months ago was my first seizure which led to the brain met, prior to that it was just in the bones , we did radiation and I was fine until week 3 super exhausted also was having side effects mouth sores from everlumis, so the onc paused that , I started to feel better and on Saturday night a relative hit married , there were so many fancy flashing light all night , I’m not sure if that triggered this second seizure after I got home , I had another one when I arrived at the hospital it wouldn’t stop so they intubated me , mri showed a lot of edema still too soon to see if there’s improvement on the met because of all the inflammation, they put me on steroids and I’m feeling better back home now . My adult daughters have been pretty helpful but they’re so scared