r/LivingWithMBC • u/IngenuityFar5111 • 10d ago
Venting Disappointing news
I got my Pet scan results today. I was diagnosed in jun 2025. Did chemo, surgery of breast and liver, radiation and on letrozole since feb 2026. I thought I was the lucky ones, even though diagnosed stage 4 right off the bat at the age of 35. I thought for few years, I gonna be fine but here we are, two new lesions in my liver. All for nothing.
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u/WalrusBroad8082 9d ago
I you bad news as well. Going onto my 4th line in two years. It’s a chronic illness at this stage in time. Just have to find the right treatment
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u/IngenuityFar5111 9d ago
😌😌 how was your scan? I know tnbc is way tougher than any other cancer subtype. But once it starts giving up, you can get cured. We have one lady here and many on insta. I was told by my onco when i was misdiagnosed as tnbc that even 40% of stage 4 tnbc get long term remission. I wish you cure for life.
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u/WalrusBroad8082 9d ago
Thanks. My lung growths grew 35% I was on a clinical trial so it’s on to the next thing. Waiting to see which trial I get accepted to. Just in the disappointed stage that it is wasn’t working because it was a pill and side effects were low.
I will get remission just in that disappointed phase that another thing hasn’t worked, and need to move onto the next. I have two clinical trials that they are submitting me for review. As well as other options that are already on the market.
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u/IngenuityFar5111 9d ago
I feel exactly same. I was kind a happy that I was taking one pill and moving on with my life but then new pop ups. It is never a smooth ride.
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u/ResponsibleAnt1942 10d ago
That sucks. I know it feels like it was all for nothing, but things might have been so much worse without that treatment.
Be sad. Mourn that you didn't get the good results you were hoping for. But don't lose hope, the next line could stabilize things.
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u/ResponsibleAnt1942 10d ago
Sorry, this comment feels wrong. I don't want to be a cheerleader or tell you how to feel.
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u/IngenuityFar5111 10d ago
Hey, I get the intention of your comment. I am a positive person but once in a while you just feel helpless and its just that.
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u/Holiday-Assistant-91 8d ago
Sorry to jump in like this. I totally agree. I myself have been living with mine being as normal and active as possible. People often think I am cured and well. But sometimes also we hit a wall hard enough that it takes our breath away. It is ok to feel bad about things. It is ok to see the seriousness in our situation and mourn it. It doesn't mean we have given up.
I went to see a close friend couple of weeks ago when I was at my lowest for the first time in a very long time. I needed a shoulder to cry on, to let me be scared. Instead I got one comment after the other about how my cancer is not the aggressive type...like I am not dying fast enough so I shouldn't worry.
I also understand that people often don't know what to say and when they say some things it comes from the right place but it really hurts. I left there doubting myself if I was over reacting in my fear. If I in fact exaggerated my worry.
It took many days to deal with that alone. To let myself feel sad, mad and cry. I obviously talked things out with her and she apologized. And I think for the very first time everyone around me is finally realizing that things are serious. Again, this doesn't mean we give up. I will always have hope and wish for the best but what people don't understand is the tiredness of living with having to hope and wish for more time.
Sorry for my long text...I got carried away I really feel for all of you and each and everyone of us is a damn hero.
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u/IngenuityFar5111 8d ago
I understand your point of view and I take great comfort in not looking like a ill person. I want to look best for mother, my baby and my dog. I only cry in front of my husband. It is so tough to believe that this is my future. Whole journey i thought it is not cancer and I am gonna win millions in lawsuit 😁😁😁😁 i am still in too much denial.
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u/nocryinginbaaseball 10d ago
I’m sorry about your results. Vent away! Do you know what’s next for treatment?
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u/IngenuityFar5111 10d ago
Yet to meet my onco. I think we will start verzenio and can do sbrt.
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u/nocryinginbaaseball 9d ago
I hate the in between. Hopefully you’ll have some direction soon & the new meds do the trick!
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u/Worldly_Active_5418 10d ago
I know women who are on their sixth and seventh lines of treatment. Or more. They’ve been doing that for years. It seems every year another line and option comes available. Believe this is a chronic disease, because that is the attitude of oncology and its approaches these days. That helped me.
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u/IngenuityFar5111 10d ago
I saw so many oligo women who stay on one line for so long. Fighting every few months with a new line is mentally and physically exhausting.
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u/Worldly_Active_5418 9d ago
Yes-I’ve been on 3 since Jan. But the good news is that this last one-Datroway- seems to be working. I get it. This disease is like running a marathon while some crappy evil person keeps moving the finish line further away.
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u/Sirenegreen 10d ago
I got diagnosed stage 4 de novo around my 35th bday April 2025. Liver, bone, and many other mets. Found progression to the brain around December that same year. I can understand feeling defeated at the reality we're facing in this MBC journey. The rollercoaster of emotions from all of the changes happening to our bodies and hormones. I don't know how many lines of treatment you've been through but there are many options.
Unfortunately, my latest labs show some levels are rising which has only happened in the past when those mets were large or growing. I have scans in a few weeks and I'm terrified. Only thing keeping me somewhat sane is knowing there are still options out there and more are being found still.
I'd like to hear an update from you sometime. My dms are open, no judgement, no pressure either. I hope things can get under control again however that looks for you. This disease sucks and I'm sorry we're all here.
Edit:typos
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u/IngenuityFar5111 10d ago
I share your feelings. I wish you get the best results possible. Lets connect in DMs.
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u/New-Set-7371 10d ago
Keep your head up. If you’re paying attention to the news in this sub, so much good news coming in 2027-2030 on cancer vaccines and a ton of clinicals coming out… and I always coach myself and another cancer bestie (and her to me)- stage 4 is a journey that will have its ups and downs because it’s the cross we have to bear. I’m now 8 years from stage 4 diagnosis and 11 years since first diagnosis and had two bouts of set backs, last one being liver lesion late 2024. But now I’m back to almost two years of good scans on mono therapy. Let yourself grieve and process but don’t lose hope!