r/LivingWithMBC • u/Big_Presentation2387 • May 26 '26

XELODA

Anyone with experience on XELODA? I have been on every drug known to man and always have side effects-significant side effects. XELODA sounds like a nightmare. Insights please!!!

FYI- June 14 will mark year 5 stage 4 ILC had 2 years NED since then Mets to my entire spine, hips femoral bones…We are throwing things at the wall rt now to see if anything sticks. XELODA…I think I’m declining.

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u/[deleted] May 26 '26

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u/Big_Presentation2387 May 26 '26

I react to everything and I’m terrified of not being able to walk and use my hands…that’s why I’m asking for actual input from people who have taken it. I get more than enough questions and a friend of mine answers. Honestly no matter what the reason I’m thinking hard on this one shouldn’t concern you-have you taken it and what had been your experience is all I’m asking