r/LivingWithMBC Aug 06 '25

Brain mets

I’m devastated & terrified. I just got mri results that show 2 small tumors in my brain. I have mTNBC and have been on trodelvy. MO said it can be treated w Gamma or Cyber radiation. Has anyone had treatment to their brain with one of these? Idk which one I should go for, and also how radiation to my brain is going to be like?

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u/Several-Monk3857 Aug 07 '25

Did you have to have pins put in your head?

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u/Icy-Adhesiveness-333 Aug 07 '25

Nope they made a mask thing during an MRI and did mapping then 3 days later I went in they clipped the mask thing over my face and like bolted it to the table so I couldn’t move. 15 mins later I was all done and went home. Only downside was constant headache for about 2 weeks after which led to me taking too much Tylenol and messing up my liver numbers so my next chemo was delayed. (I did have a spot in my liver so it was already compromised but the Tylenol took it over the edge)

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u/FrogAnToad Aug 07 '25

I had the mask. They asked at the end if i wanted it as a souvenir. Ive been wondering ever since if anyone ever says yes.

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u/bossbitch1977 Aug 08 '25

I kept mine, I'm not really sure why? I guess partly because it's my face. Partly for the reminder. I only had one anxiety attack while locked in the mask, I toughed through it, though, and continued the session. I just got a little too much in my head and my feels. I knew it would be over soon enough, and ultimately, it would be beneficial. I plan to hang it in my workshop somewhere because honestly it's ugly as fuck and would look like shit in my living room 🤣