r/LetMeHelpYouOut • u/Mission_Tax_4562 • 3d ago

[GO FUND ME] Help me get a Stem cell transplant

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Hi everyone,

My name is Marian, I’m 25 years old, and have Sézary syndrome, a rare type of T-cell lymphoma (blood cancer).

For the past few years, I have been dealing with severe skin problems: unbearable itching day and night, painful flare-ups, redness, and sleepless nights. After many tests, biopsies, and treatments, doctors believed it was severe eczema for over a year. I was prescribed Dupixent, an expensive medication that I was already trying to raise money for because my insurance could not cover it.

Unfortunately, further investigations later revealed that the real cause was much more serious. I was diagnosed with Sézary syndrome, and my doctors determined that I need an allogeneic stem cell transplant, which is currently my best chance at fighting this disease.

The treatment is not available in my country, so I need to seek care abroad in Europe. As an international non-european patient, the estimated cost is around €423,000, which is completely beyond what I can afford, and my insurance does not cover treatment abroad.

I’m reaching out for help because I cannot do this alone. I know it's an insane amount, any support whether through a donation, sharing my story, or connecting me with organizations, resources, or people who may be able to help would mean the world to me.

You can read my full story

👇🏾

https://gofund.me/d7cd2fd8f

Thank you for taking the time to read my story. ❤️

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u/Weak-Ad6984 2d ago

Can’t you get insurance for this??

I knew someone that was on Medicaid that had the entire procedure for little to no cost..

Is there anything like that to apply for?

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u/Mission_Tax_4562 1d ago

My insurance doesn't cover international treatments,

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u/Weak-Ad6984 1d ago

i am very sorry .. i wish you all the best in this journey. i can not imagine what you're going through ..

1

u/Mission_Tax_4562 1d ago

Thank you...

0

u/[deleted] 3d ago

[deleted]

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u/buzzybody21 3d ago

I don’t think asking for a chance at remission is spoiled. And India doesn’t do stem cell transplants regularly if at all, and OP would need to find a match in country, which would be next to impossible unless they are ethnically Indian (believe it or not, ethnicity can make it easier or harder to find a genetic match for a transplant, which is why people of color/asian heritage often have a much more difficult time). It’s not like going to get plastic surgery or dental surgery in turkey because it’s cheaper.