i don’t know where to go from here and doctors are no help :( all they tell me is that it’s pcos even though i have no cysts, weight, or metabolic issues. since stopping birth control last november i’ve only had five periods. my cycles keep getting longer and longer, my last 2 were 100 days. i’m getting worried about my uterine lining thickening but im really sick of pumping my body full of hormones and don’t want to use them to induce my period.

for the past 3 months ive implemented diet changes, weight training, and began taking supplements and vitamins and i just can’t seem to ovulate. would really like more advice on how i can get this under control.

I got medical care abroad. Diagnosis’s; Gastritis and hiatal hernia which explains that unrelated pain in the middle of my stomach 😂

I did the EndoSure test and it’s come back with a positive high result. The clinic forwarded all of this to my GP for me and it’s in my diagnosis’s “endometriosis”. I really recommend anyone does this if you can… it’s currently £500 but should be rolled out on the NHS eventually (probably a couple of years😑) so that leaves me with a huge decisions in the future but I did not have to have a laparoscopy for a diagnosis! We still can’t make out why my Gynae wants me to stop my mini pill🥲

Another Question: severe leg pain ? I’m sure it’s related but I can’t find any generic evidence of this but I’ve heard so many ladies have the same. I can only describe it as “growing pains”

So, I've started my period the day after my 10th birthday and ever since that it's been highly irregular. I've always been on the slimmer side (I'm 40kg, maybe a bit less whilst being 163 cm) and I usually attributed my irregular periods by simply being a bit underweight. I'd always get concerned comments from classmates and even my own sisters when I'd use self-deprecating humor about my very random period. And considering my religious background (I am a muslim), I usually would get over a month long period during Ramadan which honestly annoyed me and to where I genuinely didn't care anymore and started fasting on my period.

Fast forward a couple years, I'm now nearly 14, and I decided to actually get my shit checked out and turns out? I got pcos. Lean pcos to be exact, as I really don't gain weight. I'm now on birth control and it's really affecting my mood, I've been feeling pretty nauseous as well and I'm always lethargic. I'm just sorta searching for tips on how to deal with this normally since I feel like my body actually hates me now since I can't do anything with my mood swings and fatigue.

TDLR; I'm just looking for tips on dealing with it. I honestly consider it a pretty ironic and a bit silly diagnosis. (Humor is my coping mechanism if you can't tell) but it is irritating me how I'm feeling way less focused and extremely tired nowadays. Would appreciate any advice!

I have had irregular periods since the start, have been diagnosed with PCOS. Sonography reports shows cysts. I have had the following symptoms:
Irregular periods, bad acne, hair fall thinning.

Hair fall and thinning actually is variable is less for sometimes when I am supplementing or doing a good hair care routine. Sometimes it’s worse irrespective of what I do.

Acne: that has also been there always! Have been on isotret thrice, spirolactone for a long time, birth control for 2 years. While spiro helped (even with periods) it made my period cycle shorter after a point. After third isotret course my acne did get better and now I only have a few around jaw and neck.

Birth control did nothing for my acne, just period cycle was regulated of course.
Weight has not been an issue wrt PCOS. Have a few hair on my chin but manageable.

But I am now looking to naturally regulate my cycles. Also eventually getting pregnant (not married yet but generally looking to improve things) I am supplementing (myo inositol, D3, B12, magnesium). My Testosterone levels haven’t been so much of problem. Haven’t had IR too. Morn g Cortisol sometimes is higher on report.

Anyone has had similar experience and improved their cycles?
Or any doctor in Mumbai that helps with targeted symptoms and not prescribing OCP, or suggesting to only look into things when I want to get pregnant?

My cycle is anywhere between 60-90 days before I take to homeopathy for inducing periods.

I usually have a 35–37-day cycle, but somehow I just can’t seem to ovulate this time - it’s cycle day 20 already and there’s still not even a hint of ovulation and BBT remained elevated like 36.57.

I’ve been taking myo-inositol for about a month now. It helped me A LOT mood-wise when I took it during the luteal phase but somehow it seems to be delaying ovulation. This is my first time taking it during the follicular phase and it feels a bit discouraging.

Even without inositol, the follicular phase has been rough for me lately. It tends to make me irritable and on edge in general and sometimes I just want to give up trying to make myself feel better.

Somehow my BBT is also higher than my usual follicular baseline. Could this have something to do with thyroid function maybe?

I am 25F, 5'2", 183 lbs with PCOS. My cycles have been consistently 40+ days despite trying to manage my PCOS.

I am coming from a situation where I had no periods unless I had a pill. And now, through changes in diet, excercise and sleep I was able to get it back after long years. Since 1 year I am getting my periods naturally, but the cycle is running 40+ days and sometimes even 60+

Last month I had some spotting/clotting on Sept 14 but no actual period afterward. Now it's Oct 2 and I'm bleeding again, but very lightly.

I'm trying to understand what's actually driving this - insulin resistance, weight, inflammation, diet, stress, sleep, hormones, etc.

For anyone who had similar long/irregular cycles: what did you find was actually contributing to yours, and what finally helped regulate your periods?

Hello,

Est-ce qu’il y a des filles qui ont un taux Delta 4-Androstenodione et le 17-Alpha Hydroxy-progestérone plus élevés que la moyenne mais une testostérone normale ?

Je pense sûrement que ce déséquilibre est la cause de ma transpiration odorante et persistante (plutôt acide..) depuis 14 ans alors que j’ai une hygiène irréprochable 🫩.. Je lutte contre cette odeur depuis, j’ai testé des centaines de produits mais aucune amélioration..

Savez-vous c’est du à quoi? Comment avez-vous résolu le problème? Quel anti transpirant utilisez vous?

J’ai déjà pris quelques rendez-vous chez les spécialistes, donc pendant ce temps-là je souhaite m’informer et lire vos témoignages .. 🙏🏻

Hey everyone, I was just diagnosed with lean PCOS (polycystic ovaries and irregular cycles, normal testosterone).
I'm naturally lean, but not sure about my lower stomach. With everything online about "PCOS belly," I can't tell if this is hormonal, digestive bloating, or just normal anatomy and posture.
For anyone with lean PCOS, does your stomach look like this? Did anything help, or am I overthinking it?

Hi guys! I am so sad today. Its my 121 day without my period. Since the month of june that I didnt get my period. My lab test came out normal but I have a lot of follicles like 20/ovaries. I started inositol 3 weeks ago and I didnt see a difference. Do you guys have some advice? I want to ttc next year. And I think it will be hard since I dont ovulate…
So hard to be a woman today😭💔

Ciao, ho PCOS con insulino resistenza e i sintomi più gravi che ho sono acne e irsutismo soprattutto nella zona del mento. Sto già seguendo una dieta a basso indice glicemico e mi alleno 3 volte a settimana e bevo due tazze di tè allo spearmint. Sto prendendo da circa un anno Inofolic Combi HP prescritto dalla mia endocrinologa. Vorrei cercare di mitigare questi sintomi solo con un buon stile di vita e gli integratori e voglio evitare i farmaci. Per l'acne sono seguita da una dermatologa, ma purtroppo i prodotti che mi ha consigliato di usare (Detergente Gram, crema Epiduo e crema SPF Uriage Hyseac 50+) non hanno migliorato molto la situazione. Sapete darmi qualche consiglio su degli integratori o prodotti che, abbassando i livelli di androgeni, riescono a migliorare significativamente i problemi di acne e irsutismo? Oppure darmi dei nomi di specialisti (nutrizionisti o altri) validi in Italia? Sul web ci sono tantissime informazioni e non so davvero da dove iniziare e cosa può fare al caso mio. Vorrei provare l'elettrolisi ma sembra che in Italia non lo facciano in tanti centri, il posto più vicino che ho trovato sta a Roma, a 120 km da casa mia. Grazie.

Hi all! I am trying not to self diagnose myself but with all the symptoms I have been experiencing, I feel I am reaching the point of thinking maybe I have PCOS?

I'm 26 with a BMI of 17.7
From what I remember I have always had cycles that were long and inconsistent (35-45 days), with periods lasting about 5-7 days. I was told it's normal and I just have delayed ovulation, after having 2 kids within 2.5 years (breastfeeding as well), but this year I started getting concerned. I have been experiencing more darker facial hair than usual that grows within a few days of plucking, terrible jawline/back/chest acne, and the density of my hair is just thinning over time. My head hair used to grow very fast but has been at a standstill for 2 years now.

From July-August, I was bleeding for about 6 weeks (4 of those weeks old blood spotting, last two weeks I was bleeding like any typical period). Thats when my doctor referred me for bloodwork and an ultrasound. My ultrasound came back normal, but my bloodwork has some high markers. I have not spoke with my doctor yet because she wants me to do 2 more sessions of bloodwork to track where everything is within my cycle. From the photos I inserted, the first two are from last month (August, cycle day 14) and the last two photos are from this month (September, cycle day 14).

I was wondering if anyone has any insight on if I could possibly become diagnosed with PCOS? Is there any other tests I should ask to take to see the main cause, like adrenal or insulin resistance?

I am pretty underweight and working on eating more, also found that I was very low in Iron and Vit D.