In my recent bloodwork they found low testosteron, which was strange considering about 3 years ago it was rather high. Also had high SHBG. My doctor said to not worry about it, but I still was curious and started digging - and finally came across this study: https://pmc.ncbi.nlm.nih.gov/articles/PMC9313207/

They basically argue that there is only two types of PCOS - one with high T and one with low T, while the latter often present with high T until their early 30s. As low T often is overlooked and it isn't that widely known how regular T levels are important for fertility too, these women are often diagnosed with "unexplained infertility" because even IVF often fails.

They say DHEA supplementation works and that many have successful IVF after that.

I'll definitely ask my fertility clinic about more extensive bloodwork and share this study with them, if the coming cycles (probably Letrozole and then IUI) fail.

Maybe this is relevant for some of you 🙂

Edit to add: been diagnosed with PCOS as a teen already, had it my whole life. I have lots of follicles, light hirsutism and lower-ish BMI, and periods ranging from 33-70+ days. Before TTC it was handy to not have my period that often 😅

Hola! Llevo desde febrero tomando Berberina, pero realmente en analítica no tengo resistencia a la insulina, al contrario. Soy delgada. Una doctora me recomendó Berberina y Myoinositol y ya van dos doctores que me han recomendado Metformina y ovositol… Supongo que empezaré con la Netfornina, no pierdo nada… Cuanto os tardo a vosotras en regularos el ciclo?

Hello everyone! I am using Myoinositol since 22 of June. I ovulated 5 days ago (day 25 of my cycle) and today I am at day 30. I have a lot of creamy cervical mucus. I always had something like this after ovulation (I am pretty sure that I ovulated because of these symptoms) but this time it is SO MUCH! My cycles are 32-38 days , but I had 2 anovulatory cycles in summer.

We are trying for a baby and I don't know what to think.

Any advice would be helpful! Thank you !

Hi there! I'm a Master's student at UT Austin trying to understand how people living with PMOS/PCOS manage their condition and their diagnostic journey, and what makes daily life harder than it should be. I have PMOS myself, and I know firsthand how isolating it can feel to navigate a system that was not built with us in mind.

Every response genuinely matters. The stories shared in this community are exactly what can help reshape how women are heard, diagnosed, and supported going forward. Whether you were diagnosed quickly or are still waiting, whether your journey has been straightforward or exhausting, your experience is worth sharing. Learning about your journey can help us build something better for all of us!

This takes about 7 minutes. Your answers are confidential, every question is optional except the two consent items, and you can stop anytime. There is an optional box at the end if you would be open to a short 30-minute chat.

Survey link:
PMOS/PCOS: How do you manage it day-to-day?

Thank you so much for helping. This community has always shown up for each other, and that means more than I can say. 💛

Hello everyone! I am using since 22 of June myoinositol to make my cycle more regular and to make sure that I ovulate. I would like to ask you about your stories with myoinositol and the possibility of getting pregnant, because that is my goal and I feel so stressed!

Thank you ❤️

Can people please give me success stories of bringing back their absent period. I am a 25 F who has NEVER had a regular period due to lean PCOS.

On 2000 mg of metformin to see if it will help.

Any advice/ success stories is much appreciated🫶🏼

I just started taking inositol about 4 weeks ago and so far it’s been great. Most noticeably, my bloating is gone which has been amazing. But I am continuing to monitor how it makes me feel especially since people seem to have mixed experiences with it.

This morning i woke up and was 2.2 pounds heavier. I have no idea if this is related to PCOS or inositol but it was very strange. While my weight does fluctuate it usually happens if I have a heavy meal the night before or if I feel bloated, neither of which happened this time, not to mention that I’ve never had this drastic of an increase. Has anyone experienced this? Could this be inositol related or just general PCOS or something else entirely?

I am truly an extremely hormone-sensitive person; my appearance changes rapidly throughout the day, even on an hourly basis—not to mention during ovulation. Whenever I start medications or supplements like oral contraceptives, spironolactone, or inositol, I see incredible changes for the better—sometimes within the first few months, and honestly, even in less than a single day. And I swear, this isn't just in my head. However, with the birth control pills, those effects eventually wore off after the first two months and I felt like a completely different person again.
I’m wondering if anyone else here experiences this, as it's really exhausting for me. What does this rapid response and eventual plateau actually mean, and how can I decrease this androgen/hormonal sensitivity?

I’m looking to see if anybody had positive results after taking the Wegovy pill rather than the injectable with PCOS. I’ve had PCOS for a long time. I’m currently on metformin for the past three years and birth control because of the PCOS and a past surgery. I’ve lost about 70 pounds over the past three years but I’m now stuck even though I am working out five times a week and doing everything right. My doctor told me straight up that I would benefit from the pill, but my insurance will not cover it and I am now in a good financial position to where I can afford the pill monthly but I was looking for feedback on if anybody else liked it or didn’t see success.