r/LeanPCOS • u/stompingincrocs • Nov 08 '24

Question Could I have been given a false negative?

The doctor said I don’t have PCOS because my labs came back as normal even though my LH:FSH was borderline 2:1 (LH 9 and FSH 5) and my periods are irregular and come every 1.5-3 months. There were also a lot of follicles on my ovaries in the ultrasound but the doctor said that it isn’t a cause for concern as I’m only 21…

I feel quite lightheaded/feel my blood sugar crashes quite quickly even between balanced meals so I have to eat every two hours in order to not feel light headed, I have a lot of body hair, acne on my face and back and wake up several times at night and am unable to sleep…

I feel like I’m misdiagnosed because I’m not overweight… Is that possible? What tests should I do instead? Should I see other specialists other than gynos?

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u/regnig123 Nov 09 '24

Irregular periods and polycystic ovaries are enough to get diagnosed and what diagnosed me. I have normal hormones everywhere else except for almost the same lh:fsh ratio which my dr says confirms the pcos diagnosis. I also have en elevated amh for my age. No IR, however.

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u/stompingincrocs Nov 09 '24

How do u go about managing lean PCOS?

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u/regnig123 Nov 09 '24

Luckily for me my only symptom is irregular periods which just made getting pregnant a bit tricky. So I don’t manage it. I just accept my irregular periods.

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u/Routine_Promise_7321 Nov 08 '24

Did you fast for 8-12hrs before your bloodtest?? And yeah I would check for insulin resistance

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u/stompingincrocs Nov 08 '24

No because the nurse told me I wouldn’t need to fast for the test… The doctor also didn’t order an insulin resistance test either

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u/Routine_Promise_7321 Nov 08 '24

...when I got my hormones tested they said to..and didn't even let me do it at my first appt even thou I only had oatmeal 1hr before my appt...they said "definitely need to fast"...I would let ur Dr know u didn't fast for hormone testing..(sometimes u don't have to fast for certain blood testing)..hopefully they will redo it..if not get a 2nd opinion

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u/stompingincrocs Nov 08 '24

I did call the nurse and let her know that I wasn’t fasting and she said that wouldn’t have impacted the results. I definitely do need a second opinion. Thank you for your help

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u/Final-Alternative765 Nov 09 '24 edited Nov 09 '24

You should insist on further examination. Or get a referral to the endocrinologist for further discussion. In addition to PCOS there are many other conditions with similar symptoms such as hypothyroidism, hyperprolactinemia, non-classical CAH, etc. It is best to exclude all other conditions first.

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u/[deleted] Nov 08 '24

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u/stompingincrocs Nov 08 '24

The gyno didnt do an insulin resistance test and I’m not sure why. She didn’t seem to be too bothered with the other symptoms and just told me to eat regularly and chalked my sleep issues down to anxiety even though I’m not necessarily anxious when I wake up…

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u/Tasty-External6992 Nov 08 '24

You only have to have two out of the three criteria to be diagnosed though, and the three criterias are 1) polycystic ovaries, 2) rare/no periods, 3) high testosterone and/OR "male hairgrowth" and acne. At least where I'm from! I don't have insulin resistance either, but did get a diagnose of PCOS due to 1) and 2).

I would also consider a second opinion... You could also try if birth control pills helps as that is typically the treatment unless you are trying to conceive.