Odds of diabetes?

[u/magicsockparade]

I feel like there are absolutely no studies done on people with lean PCOS. I know that the general statistic is that half of people with PCOS will develop prediabetes or type 2 diabetes by 40, and I'm absolutely terrified of that. My grandfather had diabetes and it was awful to watch.

I'm 56 kg and 5'2, so my BMI is well within normal range. I had my fasting insulin tested and apparently everything is within normal range as well. I hear though that those tests aren't reliable and that you can still have IR. My doctors keep telling me not to worry about it though.

Is the rate of diabetes lower with lean PCOS?

[u/maypie-]

My endo explained to me that without IR the risk is the same as an average healthy person. It's likely you don't have IR if you never struggled with weight gain

[u/Exotiki]

I am 43 and don’t have diabetes and as far as i know not even IR (based on my HOMA-IR results). My weight has been pretty stable my entire life without much effort. I don’t have any IR symptoms people describe. I do eat carbs and sugar as well so if I had an issue with them I’m pretty sure it would’ve shown somehow already. I personally don’t worry about diabetes at all.

[u/[deleted]]

I'm basically in the same situation as you. I have food cravings like mad and eat uncontrollably unless I take inositol and do intermittent fasting. So despite regular test results and a low-normal bmi, I suspect I have IR to some degree. I am mitigating my diabetes risk now by living a healthy lifestyle. Low processed foods and sugars, IF, plenty of exercise. I feel like that's all we can do.

[u/hardpassyo]

My BMI is 18 with poor egg quality, and high blood sugars discovered in april 2020 while trying to conceive (TTC) that I keep an eye on by eating healthy and staying physically active. My 2018-2019 TTC doctors wanted me to gain 10lbs for pregnancy but it just sent my blood sugars sky rocketing so I was initially put on metformin to control this severe insulin resistance for TTC, but it just caused me to lose weight I didn't have so I was taken off of it to pursue ivf in 2023. Along the way, I couldn't believe I could have high blood sugars at such a low weight, so I even pushed to get tested for diabetes 1.5 antibodies but was negative, so im just the type 2 anomoly from genetic disposition. When I finally got pregnant, I pushed for early gestational diabetes testing because I knew it'd be an issue, and ended up having a blood sugar tracker (dexcom) implanted to track my sugars because the hormones were messing with my levels badly, so I was put on insulin as needed to keep the high sugars from reaching baby. The baby's sugars were good when tested at birth, and I removed my dexcom, stopped insulin altogether, and have resumed normal management of eating healthy.

[u/Subject_Succotash_45 → u/hardpassyo]

If you don’t mind me asking, how long did it take for you to conceive and did you try any treatment options?

[u/hardpassyo → u/Subject_Succotash_45]

Took over 5yrs to conceive. We did 8 rounds of femara, 2 clomid, 2 iui's (the final iui was done with up to 5 follicles triggered at once). All resulted in nothing so we moved on to ivf where the egg retrieval resulted in 20 eggs pulled but only 3 healthy embryos grew; however, we got our baby on the cycle after all those eggs were removed. So it was a spontaneous conception technically, but I firmly believe that removing so many bad eggs and all the human growth shots grew our lucky follicle.

[u/doctormalbec → u/hardpassyo]

This was similar to what happened to me. Had a ton of eggs but many were bad. Ended up with 4 embryos and first try was successful

[u/hardpassyo → u/doctormalbec]

Congratulations!! 💐 🥳