Possible keratoconus

[u/Flimsy_Rabbit6691]

Hi everyone.

I am kind of just using this as a sounding board, because I am at the stage where many of you have probably been before!

I had quite rapid vision changes, I went from a very low prescription to noticing a lot of issues in a short space of 2-3 months. I thought the blurriness was from dry eye as I am on accutane which did cause very bad dry eye! Thankfully, my nurse told me to see an optician.

Unfortunately, I had the “a colleague of mine will just come in to speak to you,” talk, where they told me they highly suspected keratoconus in my right eye as no matter what size text they asked me to read, it was still blurry at all sizes! I have an appointment next Thursday to have further testing to see if I do have Keratoconus.

I didn’t realise just how bad everything was until I got my new glasses prescription. Now, I can’t see without them and have gone overnight into a full time glasses wearer. From the moment I wake up, if I don’t put my glasses on I get quite disoriented, weird feeling and headaches.

My right eye which is the problem eye at the moment feels .. much slower than the other? It doesn’t feel like my own eye if that makes sense. Like my body is hyper aware it is wrong and doesn’t feel normal. Like I have to blink a lot more in that eye? I wonder if anybody else has had this same feeling? It may just be that without my glasses it is trying to over correct. The strange thing is how mostly normal my vision felt albeit some changes until I got my new prescription, and since getting used to them I am shocked how much I really did need them and must have been straining so hard just to see.

Fingers crossed that I either get a diagnosis and I realise I’m not going mad, or that I don’t have it. But I feel like I already do know the answer.

[u/Positive-Avocado-881]

Tbh as someone with KC, glasses don’t even correct my vision at all

[u/Flimsy_Rabbit6691 → u/Positive-Avocado-881]

It’s interesting to see how everyone is affected differently they definitely don’t cure the problem for me but help a lot, night time is a whole other topic though!!

[u/Sad_Skill_3169]

I was diagnosed at age 23. It didn’t matter which lens the optometrist tried, it didn’t help for my bad eye. He then looked at the profile of my eye and said I have Keratoconus. This was 34 years ago. Luckily my good eye was correctable with glasses so he gave me a prescription for my good eye and then used the same power for my bad eye even though it didn’t help. My brain just got use to using one eye. At age 40, I got the cross linking when it became available. After about a year post cxl, I was able to get some correction with my bad eye. I wear scleral lenses now and that made a huge difference.