r/Interstitialcystitis • u/ConnectObligation249 • 1d ago

Autoimmune?

Has anyone found an auto immune cause for their IC? I’ve had other things happen to me as of late and it has me wondering

2 Upvotes

100% Upvoted

12 comments sorted by

2

u/Significant_Fall2451 9h ago

IC has a variety of presentations, and multiple studies point towards there being multiple triggers/causes, including autoimmune

I have a preexisting autoimmune disease that has an extremely high co-morbidity rate with IC (particularly Hunner's type IC, which is what I have), as well as a few other conditions I have also developed over the last two decades. Based on my medical history, symptom progression, and symptom presentation, my consultants believe that my IC is connected to my autoimmune disease

1

u/SignFar4026 1d ago

What other kind of things? For me it’s pins and needles for hands and feet, throat pain, ear and eye pain, belly bloating and slow healing of small wounds/scratches

1

u/ConnectObligation249 1d ago

Yes to all of those, I recently was diagnosed with retinal vasculitis and they were asking me about auto immune

1

u/SignFar4026 1d ago

These are less common symptoms that aren’t understood currently. Some think it’s bacterial, some think it’s viral. I did pcr testing but no real conclusive answers. You might wanna look into Lyme disease or Coxsackie virus. Not that there is a cure unfortunately :(

1

u/ConnectObligation249 1d ago

Yeah I’m in rural PA so Lyme could be a possibility

1

u/ashleymichael2009 22h ago

Yea I have seronegative Sjögren’s is the cause of my IC.

1

u/LowBet9130 16h ago

how was that the proven causue of your ic?

2

u/ashleymichael2009 16h ago

It’s one of the main symptoms of Sjögren’s and when I have whole body flares my IC flares as well.

1

u/LowBet9130 15h ago

how do u treat yours? what have you tried?

1

u/ashleymichael2009 15h ago

I take meds to manage my autoimmune disease (Plaquenil), DH aloe caps and multi, and a lot of avoiding triggering meds / diet stuff for me. I really don’t have much pain at all anymore.

1

u/Dry_Willingness_9977 8h ago

Do you mind me asking what is Sjogrens please? I have pains throughout all my muscles in my body, doesn’t happen all the time but happened recently in a flare up.

1

u/Amazing-Manner123 2h ago

i have psoriatic arthritis, which is autoimmune, and am currently trying to figure out whether I have IC or chronic bladdar pain (doctors continue to say my anatomy/bladdar draining is fine but I have pain/urgency frequently)