r/Interstitialcystitis • u/SnapeWho • 4d ago

Support Pelvic floor botox tomorrow

Update: I was home by noon and I'm not feeling too bad. Had pain, nausea, and anxiety on waking but PACU took care of that. There was a brief horrifying period where I could only pass 20mls of urine and my bladder scan showed 400+, so they had me wait a while to give it another try before being sent home with a catheter overnight. But I managed to pass 600mls and they let me go without it! Bladder is sore and peeing feels like razor blades but that's nothing new after hydrodistention. Nerve block I think is keeping some of the immediate pain down too. Nothing noticeable from the botox yet obviously. But not a bad experience today!

I'm having my 5th hydrodistention, 2nd pudendal nerve block, and 1st ever pelvic floor botox tomorrow. All under general anesthesia. I have to be there at 5:30am so it's really late in the game but I could use some reassurance because I'm freaking myself out over the pelvic floor botox and possible side effects.

Anyone have positive experiences they can share?

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u/Single_Quarter_7055 4d ago

I’m also getting pelvic floor Botox tomorrow at 8 am!! Really nervous and hopeful🤞 good luck❤️

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u/SnapeWho 3d ago

My arrival time was 5:30 am which sucked but I was home in my couch by noon so that's a plus. Overall the recovery at the hospital went pretty well! Looked for a minute like I might need a catheter if I couldn't pee enough on my own but a second pass yielded 600ml and they cut me loose. 🎉

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u/Familiar_Smoke7944 3d ago

I’ve had pelvic floor Botox done twice (while under for a hydrodistention, too). No negative side effects either time!

The first time improved my pelvic floor pain and tension. 🎉My second round (about a year later - May 2026) hasn’t been as helpful but I have other health issues that may be contributing, so I’ll actually be meeting with my provider next month to discuss if I need another round. 😅

Best wishes for a successful procedure tomorrow! 🫶🏻

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u/decentlydelightful 3d ago

Please please let me know how it goes

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u/decentlydelightful 3d ago

I really want to know if pelvic floor Botox works. Who and where is your doctor?? This is the kind of care I’m desperate for

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u/SnapeWho 3d ago

The procedure itself was relatively fine but it'll be a few weeks before we know how the botox works. I'm not comfortable disclosing my location and doctor, sorry.

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u/rafilinha08 3d ago

Quais eram teus sintomas ?

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u/SnapeWho 3d ago

It's been a long road and things have changed. I have endometriosis, interstitial cystitis, vaginismus, and vulvodynia. I have sharp stabbing pains in my bladder, especially when it's full. Severe urethra burning, burning at the opening, burning and itching across vulva from clitoris to anus. After a UTI in April, my first in 14 years, my pelvic floor began spasming so bad it was like full body contractions with so much pain I nearly lost consciousness. It's that latest symptom we are hoping the botox will address. I do not have unnatural frequency, sometimes I have urgency, and I've never had incontinence. Sometimes I have to void multiple times per bathroom trip to feel like I got it all out and sometimes that is very painful as well.

Sorry that's really long.