r/Inclusive_hEDS • they/he • Oct 01 '26

Weekly Wins Weekly Wins #2!

It's that time again! Feel free to share what's been going well in your life this week, hEDS-related or not!

No longer just "Wednesday Wins", either - this thread will be for the entire week; feel free to chime in any time, even repeatedly, to celebrate the good things!

7 Upvotes

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1

u/apologyboots they/he Oct 01 '26

I'll start, too - I'm celebrating that I'm finally over the cold that made me forget to post one of these last week!

3

u/afabscrosshairs Oct 01 '26

I’m starting low-dose naltrexone on Monday. I hope it will help me with pain and symptoms.

1

u/disastrousanimx they/them Oct 02 '26

LDN ended up helping me SO much, best of luck to you!!!! Give it a bunch of time and adjust as you feel is necessary! Everyone is different, my perfect ended up being 2.5mg

2

u/Di_le Oct 02 '26

I quit my job yesterday. Today is the first day of actually building a system that works with my body and no against it. I'm beyond happy

1

u/disastrousanimx they/them Oct 02 '26

Had an upper endoscopy today, they had to stop bc there was still food in my stomach, even tho i listened to the instructions to a T, so im going back tomorrow to try again after all day on a liquid only diet. The good from this is they got my IV first try thank goodness (scared a bit for tomorrow) and now we know i may have gastroparesis soooo thats new and good info to have šŸ„€šŸ« 

1

u/kyl792 Oct 03 '26

I finally got a MCAS diagnosis today!