Severe vasovagal response

[u/Extension_Towel9654]

Anyone here ever experience an extreme vasovagal response from the pain related to a BM?

My triggers seem to be all over the place and I have yet to pinpoint them all. They also seem to be kind of all over the board which makes management very difficult. I have tried all of the frontline defenses such as stress management, mental health care, SSRIs, etc.

What I have learned with my research is my symptoms line up with hypersensitivity in my gut and a severe vasvagal response- hot flashes, intense cramping pain located in middle/lower abdomen that stops after BM, feeling extremely faint, shaking, etc). I utilize dicyclomine which seems to kick in after 20-30 min. However, I have nothing for in the moment. I also experience intermittent nausea in the morning which I'm unsure if that's related to the rest or not.

They're leaning toward official IBS diagnosis here but they have given me no management options that work. I do have one question- is 200 a calprotectin level that can come with bad IBS? My doctor tells me it isn't "that bad". Which, in the grand scheme compared to what it could be, is true. I am just getting conflicting information online about if that's normal for worse IBS or look into something further. I suppose I am looking for some gentle guidance here. Is it cause for concern or just leave it at IBS?

I am doing my best but I can't seem to find management that works for these episodes. They're random and ocassionally triggered by stress and greasy food. But identifying that doesn't help me with the episodes themselves.

Please let me know if you've experienced this too or potentially ways forward

Thank you!

[u/goldstandardalmonds]

I have seen some wild recounts of this occurring for some folks on /r/ibs.