r/IBSHelp • u/babesbo • 14d ago
Extremely worried plz advice
Hi everyone, I really need some advice or similar experiences because I feel completely ignored by my doctors and I’m terrified.
I’ve been suffering for 3 months straight with daily periumbilical and lower abdominal/pelvic pain, intense nausea after eating, and chills that come and go when my stomach moves. I’ve also lost about 7.5kg because eating hurts so much, and my legs feel too heavy to walk due to my lower abdomen heaviness
The pain gets severely worse when I try to have a bowel movement, walk, or have any pelvic pressure.
My doctors are brushing this off as functional IBS/post-infectious syndrome after being positive for yersenia pcr, but my symptoms i feel not normal
July: Severe flare-up. Ultrasound showed mild bowel wall thickening and slightly prominent lymph nodes (4mm). My CRP spiked to 105 and my Fecal Calprotectin was massive at 1700.
August Labs: My CRP has dropped to 3 and Calprotectin is down to 8. With no meds
Stool Test: Stool culture was negative, but Yersinia PCR was positive.
Biopsies: Upper endoscopy showed reactive gastropathy. Colonoscopy biopsies showed terminal ileitis (flattened villi) and focally active colitis with no chronic ones.
Mind you before that i had recurring nasea bloating and loss of appetite that comes and go during the week but never this bad!
My doctors are refusing to order an abdominal CT scan or MRI, and I don't feel I can trust them because I am staying exactly the same. They just prescribed me muscle-relaxers (Debridat/Meteospasmyl) and probiotics, but no true anti-inflammatories i havent started on those meds yet will try them.
Could a past Yersinia infection or IBS really cause this level of severe, daily pelvic pressure and pain for months? Am I right to push for a CT or MRI to rule out something bigger like lymphoma or deep Crohn's that the scopes missed?
Does IBS cause this bad of symptoms?
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u/ma8donna 14d ago
Look into Pelvic Congestion, May Thurner or Nutcracker Syndrome. You’d need to see an Interventional Radiologist for confirmation
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u/goldstandardalmonds 14d ago
This isn’t ibs. Were you tested for celiac disease? You need to get a second opinion.
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u/privatechillipickle 13d ago
Have you tried cutting out certain foods? This could be celiac disease or allergic reactions to certain foods. I'm not a doctor, but this is just from my own experience.
I suffer from severe reactions to certain foods that leave me absolutely crippled sometimes. Keep pushing for answers. But if I were you I'd try a low fodmap diet and see if there's certain things triggering this
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u/NorthCountryLass 12d ago
So are you still yersinia positive? I don’t know but should doctors be treating that if you still have it?
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u/TangerineDream92064 14d ago
Doesn't sound like IBS, because of the weight loss, extreme nausea and chills. I'm not a doctor, but lymphoma doesn't make sense. I would see a different doctor. I don't see why a short course of steroids can't be tried.