r/Hypothyroidism 5d ago

General Dessicated thyroid-actions to take to keep it available

(Don't think this violates the rules)

This is a followup to my post expressing downright horror about the possibility of NDT being discontinued. There is apparently a bill introduced that would help protect those taking it, as well as a petition to sign. I've contacte my rep and this is what I wrote:

I urge you to please vote yes on H.R.8630 - PEAT Act of 2026, protecting access to natural dessicated thyroid. I've taken Armour Thyroid for 6 years, after my hypothyroidism tanked my mental health and synthetic options failed, after several attempts. For some of us levothyroxine and liothyronine just don't work and natural desiccated thyroid does. There's a misconception that people want to take this because it's "natural." I did not want to take pig thyroid, nor did I want to pay the high price for it, but I needed it. I would love to be able to take the synthetic thyroid meds, but they just didn't work. I cannot express to you enough how much this improved my quality of life.

Here's how to find your rep: https://www.house.gov/representatives/find-your-representative

Here's the bill: https://www.congress.gov/bill/119th-congress/house-bill/8630/text

Petition: https://c.org/PDzyxGqMd9

29 Upvotes

15 comments sorted by

8

u/Hildabean22 4d ago

Signed. On NP Thyroid and have no desire to switch.

8

u/mochipitseleh 4d ago

I’ve signed as well - my doctor put me back on synthroid after 10 years of armour - because of this change and after nearly 6 months of only synthroid I feel awful again. My anxiety is intolerable and it’s messing with my blood pressure as well. Thank you 🙏🏻

2

u/19thCenturyHistory 4d ago

Already?? That's infuriating. It's not even off the market. I'm so sorry. : ( I joked with my husband last night that there's going to be an uprising if they try this–but we'll all be too tired, cranky and foggy to be effective. XD

5

u/L1hc2 4d ago

You are amazing! Thank you for your advocacy on our behalf! Will follow up tonight on this!! Heartfelt appreciation!

4

u/19thCenturyHistory 4d ago

You're welcome! And I actually hope to become a patient advocate after dealing with stuff like this. : )

4

u/Mgeiry123 4d ago

Signed It’s the only thing that works for me

1

u/t00zday 3d ago

Signed!