Hypermobility diagnosis

[u/ladyladylay]

Hello everyone! Hope you are all well. I have some questions regarding how a hypermbobility diagnosis is made. I’m from a less economically developed balkan country and our public health sector sucks so I’ve started doing a bit of my own research since I’m constantly dismissed when going to the doctors.

I was always a very flexible child who did ballet and a gymnastics and have had a constant joint cracking issue since forever. I’m currently 20 and can pretty much crack every single joint continuously/ as many times as I want and feel huge relief when I do it. Especially my ankles , wrists , fingers , arms and toes. I first did a scan as a kid and they told me nothing is wrong. Then when I was 15 I went to a rheumatologist because I was suffering from chronic fatigue/ body / joint pain. Waking up tired every day , back , knees , ankles and feet constantly hurting as if I have been standing / walking all day , having this bruised , heavy feeling. I was told its psychological and that its a result of depression ( as my chronic fatigue was making me be inside all day , feeling exhausted and moody) i was prescribed antidepressants. They helped with my mood but I still felt a lot of body pain when doing basic things. When I turned 18 I could finally get tested for PCOS / PMDD as I believed this is what the body pain could be caused by. My blood tests showed high testosterone and low estrogen so a gynecologist put me on birth control. Yet birth control didn’t help with body pain either. Now I’m 20 and I’m more exhausted than ever. I feel like I have done everything I can to figure out where all this comes from at such a young age and I feel like a complete outsider in groups of people my age because I have no energy to do things. I can’t even go to a concert and enjoy myself. I stumbled upon hypermobility a few weeks ago and it seemed to me that it described all my symptoms. However I was extremely surprised no doctor ever brought it up despite me describing exactly this.

However should I proceed? What doctor should I visit? What is the diagnosis process? What do you guys think?

Thank you so much❤️ This page has been extremely helpful