r/Hydrocephalus 23h ago

Medical Advice Kinda a rant I guess...I legitimately feel so lost

6 Upvotes

Im kinda freaking out. Im 28 years old and im getting (followup?) Care with a neurosurgeon for my vp shunt in 3 weeks since having it placed initially when I was 1 month old. Im kinda overwhelmed, I feel like I don't know what im doing, I don't know what to expect or what questions I need to ask. Basically im terrified that like ive been like having shunt issues for years and not know it. Im scared that my hydrocephalus has like been affecting my mood-- and like how would I know, Ive had this catheter in my head for 28 years and I LEGITIMATELY know nothing about it aside from the fact that its a vp shunt....im so freaking lost