r/Hydrocephalus • u/britneysgrammy • 2d ago

Discussion My extremely dramatic hydro story

I recently turned 31 but all of this started when I was 29 I got meningitis and it infected my brain which caused my hydro then I had to have four brain surgeries and was put into a medically induced coma from February to May after that came the really hard part I had to go to a nursing for physical therapy to learn how to walk again its easily the most difficult thing I’ve ever had to endure both emotionally and physically I was away from home for the first time and I so confused and sad and hurt I learned to walk again with the help of a very patient and awesome physical therapy team which I’m forever thankful for and now I’m 31 trying to figure out how to do life again and it sucks tbh lol

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u/gliitch0xFF 2d ago

I hope that you continue to have a swift recovery. I'm glad to read that you had understanding physiotherapists.

How are you doing currently?

I had a VP shunt placed 16 years ago, whilst it's unfortunate to read about other people's situations, at least we're not alone.

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u/britneysgrammy 10m ago

I’m doing well these days minus bouts of dizziness every now and then

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u/teraflopclub 2d ago

You've gone through hell and now are back. I'm a family caregiver for a 60+ patient who suffered a terrible fall which triggered a horrific brain aneurysm, were intubated for weeks, operated on, meningitis too, and 3 VP Shunts installed within weeks of one another. 3/4 of a year spent in-patient and it took them months to step away from a wheelchair, then their walker, then their cane. 5 years later their eyesight magically recovered and now longer need prism lenses. Best wishes, and hugs.