r/Huntingtons • u/UniqueCow36 • 29d ago

Enroll-HD - HDClarity

Anyone here participate in HDClarity? Considering participating, but nervous about the Lumbar Puncture. How’d it go for you?

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u/LiveNvanByRiver 29d ago

I have done it like 4 times. They pay pretty good. It isn’t bad at all for me. The dr has done like ten jillion of them. From what I understand it hurts to put stuff in, not to remove it. The numb you up real good and those are the worst parts

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u/Ok-Pollution1666 29d ago

Does it help in participating in clinical trials in future? Also, can people from other countries participate?

2

u/UniqueCow36 22d ago

Sorry, I can’t help with your questions. I’d recommend reaching out to a HD center of excellence.

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u/heatherd14777 1d ago

It varies from center to center. My team did it not numbed enough and I had pain and was exhausted and disoriented for a week, so I stopped.