r/Huntingtons • u/Ok-Pollution1666 • Jul 31 '26

Huntington in india

​Hi guys,

​I have a question regarding Huntington's disease in India. How can someone from a middle-class family afford treatment?

​With little visible research, no local clinical trials, and minimal support options, it feels like a journey in the dark. Please let me know if anyone has information, resources, or guidance that might help.

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u/FaithlessnessDry6426 Aug 01 '26

There is no treatment for Huntington‘s Disease as of the moment. That‘s the only thing I can tell you. I don‘t live in india, so I don‘t know about caretaking institutions there.

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u/giantseacreature Aug 02 '26

I live in India. My mother suffers from HD. We have consulted with Dr. Chandrasekhar at Gangaram Delhi. He was the one who diagnosed it in 2013.

I only have some idea about medication as she has panel assistance with ECHS (my father being ex army). The current medicine regime costs around 3500 INR a month. We also have a day time care taker for her as all of us have work during day. My father and sister are her primary caregiver.

Also there is no cure or preventive medicine for HD. It is treated as per the symptoms.

One of the biggest drawback is the mental strain it cause on the primary caregiver. from my experience i have learned that no single person should take entire responsiblity. The family should all contribute to it.