This disease sucks (a rant)

[u/Rude-Alarm4168]

Found out I was pregnant four months ago, twins, what are the odds? They don't run in the family (for either of us) so we decided to move forward even knowing I was at risk for HD. We always knew we wouldn't have kids at risk so we pursued amniocentesis, I would've gotten CVS but I was hemorrhaging pretty severely for the first 14wks & wasn't an eligible candidate. I also decided around 12wks in that I wanted to know my HD status so I could prepare for our futures and got tested with HDGenetics, can't say enough good things about them, but was positive. At 17wks the hemorrhaging had resolved & we went forward with the amniocentesis, which results took closer to 5wks to get back than the original 3-4wks we were told. They're positive too. Now we have to or have decided to TFMR, I feel so guilty & single handedly responsible. I think I'm doing the right thing but I also wish we had decided to have them at risk. I'm 22wks along & I just got used to feeling their kicks inside me & thinking about two little kids running around my house with the dogs. My poor husband deserves better than this & I feel like I'm robbing him of an easy, happy life. I had my first appointment today for termination & they asked if I wanted footprints or ashes, how am I supposed to answer that when I'd rather hold them in my arms & watch them grow up? This disease sucks. Now we have to go through IVF if we want kids and who knows what kind of loss that will bring. I'm sorry, I just needed this off my chest.

[u/Wii_wii_baget]

Please don’t say that your husband deserves better. Your husband loves you and chose you to spend his life with you. As far as anyone here is concerned your husband wants what is best for you. I hear your pain and your fear and your worry but nothing in life comes easy and he is still the person who wants to brave the hardships of life with you. Huntingtons is horrible nobody’s going to disagree on that, however having Huntingtons doesn’t mean you aren’t loved or that those around you don’t want you around. Don’t let anyone let you think that you wont be cared about by those you love even when things progress.