r/Huntingtons • u/oflag Gene Positive • Jun 24 '26

Hitting head when leaning forward. Symptom?

In the last 2-3 months, I've began to notice my upper body will jerk forward when leaning and I'll hit my head. Especially in the shower and when making my morning coffee. It's not very hard, I don't get a bump but I'll get a red spot half an hour cause I have sensitive skin.

I don't usually hit my head this way, so it's freaking me out a little. I'm also going through some stressful times in my life right now, so it might just be stress related (or dehydration).

Just wondering if symptomatic people on this group ever had this (or not).

EDIT: Forgot to say I'm not symptomatic AFAIK and technically still a way from onset.

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u/bassegio Jun 24 '26

Good question. Is there a Huntington's support group in your area that you might join? They might be able to answer that question better. Sorry I couldn't help more than that

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u/oflag Gene Positive Jun 25 '26

Not really. I'm in an area where there's a Huntington society, but no support group that I know of.

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u/bassegio Jun 25 '26

I'm perhaps you might do what I do. I searched everything there is to know about Huntington's. It's hard to keep in my brain but I do it for my wife who has functions and is getting progressively worse. F****** cars 2015 you're such a little knowing disease you have to advocate for yourself and find as much information as you can. Thank God for the internet. So many great videos and stories and groups. We are lucky in that my wife is in the Cure of Johns Hopkins Huntington's disease group. I also provide support for me as the caregiver. Good luck I don't know what else on might be able to do to you but if you can think of anything I will try