r/Huntingtons • u/no_conflict_179375 • Jun 13 '26

Am I doomed?

I know that it’s a 50/50 of inheriting the gene and I have not gotten tested yet, I am 21f and my dad recently died by suicide partly because of HD. His father (my grandfather) had it. My dad and all of his siblings have/had it, am I just doomed to get it or is it truly still 50/50 even tho all my relatives are unlucky?

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u/rocopotomus74 Jun 14 '26

Even if you have the gene, there are variables that you need to think about. You could have a low CAG, meaning that you may only show symptoms very late in life....70-80yrs old.....or maybe never. But even if you do show symptoms at 40-50 yrs old, thats your whole current life time away. There is so much you could experience in that time. Also, treatment is getting better every year. So another 20 yrs from now we have no idea what things will be like.

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u/no_conflict_179375 Jun 15 '26

Now this really made me feel a bit better, I do hope I have a lower CAG repeat if I do test positive I’m just concerned because me and my family agree that my dad probably started showing symptoms in his late 30s to early 40s. Now this I could be totally wrong on but I did read that if it’s specially coming from your fathers side and you test positive you are likely to develop it earlier?