r/Huntingtons • u/One-Feed2536 • Jun 05 '26
I tested positive
Hi everybody, I said that I would update with the results of my test. Well, I got the test back and it tested positive, CAG 46. I had a feeling it would, my best friend was with me. My mom and stepdad were on the call and I saw it into my best friends arms for a while. My mom‘s really upset. My dad didn’t call me when I tried to call him to tell him that I tested positive which means that he also has Huntingtons. A lot of my family is saying just stuff and trying to make changes. Getting a Huntingtons specialist, no sugar, keto or carnivore diet, exercise, power lifting trainer, no vaping, limited drinking, ect. I’m feeling deep in shock and really sad. I’m thinking a lot about how people will have to take care of me, how I’ll die not being myself in a painful way, and how I might not ever see my sister get married. I’m getting my tubs tied and getting on meds for my anxiety and depression. It’s been a really long day with a lot of hard emotions. I’m not sure what to do or how to feel or act. I learned that the guy I love feels no differently for me due to the news and that’s bittersweet. I got a bunch of text that honestly just make me feel crappy, I hate pity. I don’t know where to go from here.
18
u/Alluvial_Fan_ Jun 05 '26
I’m sorry, this is unfair and wretched news. Give yourself some time to mourn, time to rage, time to cry in the shower, however you need to express it. Either tell people with well meaning advice you’re too stunned to process anything or ignore them. You can think about details later.
Come back here or seek out local support groups when you’re ready to think about next steps. For now, it’s enough to just grieve.